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Patient centred care

Validation of an instrument to assess informal caregivers' perceptions about the delivery of patient-centred care to people with intellectual disabilities in residential settings

BACKGROUND: Validated instruments are needed to assess the delivery of patient-centred care (PCC) to people with intellectual disabilities (PWIDs) needing 24-h care in residential settings. Eight dimensions of PCC have been identified: taking patients' preferences into account; access to care; emotional support; physical comfort; information and education; involvement of family and friends; coordination of care; and continuity and secure transition.

Mon, 10/07/2019 - 11:58

A carer's perspective of coping with dementia

Although Jean Tottie had worked in health and social care for 35 years, mostly in older people's services, nothing prepared her for her caring role. She found it a huge struggle trying to get the right care at the right time for her father so that he could stay living independently at home; so much so that she did not recognise her own needs. Here is Jean's story. 

Thu, 07/20/2017 - 15:20

The effect on caregiver burden of a problem-based home visiting programme for frail older people

Objective: caregiver effects of geriatric care models focusing primarily at the patient have not been consistently studied. We studied caregiver effects of a nurse-led comprehensive geriatric evaluation and management (GEM) programme for community-dwelling frail older people that showed—in a randomised comparison with usual care-–health-related quality of life benefits for the care receivers.

Thu, 07/20/2017 - 15:19

Understanding and improving transitions of older people: a user and carer centred approach

The aim of this study was not just to understand older people’s experiences of care transitions, but also to conduct the research in a way that would help to embed the findings in health and social care policy and practice.

Thu, 07/20/2017 - 15:16

Integrated transitional care: patient, informal caregiver and health care provider perspectives on care transitions for older persons with hip fracture

Introduction: Complex older adults, such as those with hip fracture, frequently require care from multiple professionals across a variety of settings. Integrated care both between providers and across settings is important to ensure care quality and patient safety. The purpose of this study was to determine the core factors related to poorly integrated care when hip fracture patients transition between care settings.

Thu, 07/20/2017 - 15:09