CAREN logo

Carer Research and Knowledge Exchange Network (CAREN)

You are here

  1. Home
  2. Patient perspectives

Patient perspectives

Self‐care experiences of Pakistani patients with COPD and the role of family in self‐care: A phenomenological inquiry

Background: Self‐care enables patients in improving quality of life and reducing hospital admissions. Research explored the experiences of patients about breathlessness, sleep problems and complication management in chronic obstructive pulmonary disease (COPD). However, the self‐care experiences and the role of the family in self‐care are underexplored. Objectives: This study aimed to understand the self‐care experiences of patients with COPD and explore the role of the family in self‐care.

Sat, 06/18/2022 - 16:23

Participant and Caregiver Perspectives on Clinical Research During Covid‐19 Pandemic

BACKGROUND/OBJECTIVES The COVID‐19 pandemic has massively disrupted essential clinical research. Many regulatory organizations have rightfully advocated to temporarily halt enrollment and curtail all face‐to‐face interactions. Views and opinions of patients and their caregivers are seldom considered while making such decisions. The objective was to study older participantsʼ and their caregiversʼ perspectives to participate in ongoing clinical research during the COVID‐19 pandemic. DESIGN Cross‐sectional.

Tue, 08/04/2020 - 10:22

From 'conductor' to 'second fiddle': older adult care recipients' perspectives on transitions in family caring at hospital admission

Background: Family carers provide strong support for many older adults, often enabling older adults to remain at home. Little is known about the care recipients’ perspectives of the role and contributions of family carers, particularly when hospital admissions occur as part of end of life care.

Aim: This paper explores the meanings of family caring for care recipients by drawing on older adults’ perspectives about the impact of hospital admission on established family caring relationships.

Thu, 07/20/2017 - 15:09