Patient reported outcome measures

Background: Randomised controlled trials suggest that family therapy has a positive effect on the course of depression, schizophrenia and anorexia nervosa. However, it is largely unknown whether a positive link also exists between caregiver involvement and patient outcome in everyday psychiatric hospital care, using information reported directly from patients, i.e. patient-reported experience measures (PREM), and their caregivers.

Objective To examine the reliability and validity of Patient-Reported Outcomes Measurement Information System (PROMIS) measures of sleep disturbance and fatigue in traumatic brain injury (TBI) caregivers and to determine the severity of fatigue and sleep disturbance in these caregivers. Design Cross-sectional survey data collected through an online data capture platform. Setting A total of 4 rehabilitation hospitals and Walter Reed National Military Medical Center.

Objective: To develop and test face and content validity, and user interface design of a rehabilitative care patient experience measure.; Design: Mixed methods, cross-sectional validation study that included subject matter expert input. Cognitive interviewing tested user interface and design.; Setting: Outpatient rehabilitative care settings.; Participants: Subject matter experts (n=3), health care providers (n=137), and patients and caregivers (n=5) contributed to the question development.