Patients

Stroke patients, and their carers can have many questions about the mental and physical effects of the condition, hospital procedures and treatments, and prospects for the future. This paper discusses issues involved in giving information to patients-some of whom may be experiencing serious communication problems - as well as those looking after them, and offers solutions. 

BACKGROUND: Although carers' reactions to schizophrenic illness in a close family member may have important implications for the patient and for themselves, little is known of factors that influence the way carers respond. In the area of physical health problems, people's models of their illness or illness representations have been found to be related to the ways they react and cope with their illness. This study examines the use of a modified form of the Illness Perception Questionnaire (IPQ) to investigate illness models in a sample of carers of schizophrenia patients.

Looks at how Hertsmere Primary Care Trust and West Herts community health council are developing an initiative to involve patients, carers, families and general practitioners. They invited a fifth of patients to get involved in a shadow patients' forum and was heartened by people's eagerness to give something back.

Social networking technology is making it easier for patients' friends and family to provide support. Tyze a private social platform which has been developed in Canada, is one example. It consists of a shared calender, a messaging system and a 'CareWall' where stories and updates can be posted. Two users of the system are briefly profiled and the benefits they get from the system explained. 

OBJECTIVE: To investigate whether spouses' psychological well-being changed between the first weeks after their partner's stroke and four months and one year later, and to study the relationship between spouses' psychological well-being and objective characteristics of the stroke patients.

DESIGN: Prospective, longitudinal study.

SETTING: Hospital care and follow-ups.

SUBJECTS: Sixty-seven consecutively enrolled spouses to first-ever stroke patients < 75 years.

A short video aimed at health professionals which features a number of professionals, patients and carers, who talk about how a more personalised approach to care can improve outcomes.

A review of articles published between 2000 and 2013, retrieved from several databases, was conducted to identify research findings regarding nursing interventions intended to meet the needs of the family members of patients in the intensive care unit. The dimensions of need identified were support, comfort, reassurance, information and closeness, with reassurance, information and closeness being the most important. Overall, the needs of patients’ family members were unmet.

OBJECTIVE: To explore the experience of caregiving in informal carers of stroke patients.

DESIGN: The research approach was qualitative. Data were collected one year after the stroke occurred using a semi-structured interview. The audio-taped interviews were transcribed and following this process were analysed thematically using constant comparative procedures.

SETTING: West of Scotland.

SUBJECTS: Twenty-two informal carers of stroke patients.

In a cross-sectional survey, the authors assessed the attitudes of older patients and their carers towards receiving copies of letters about them and the effects upon outcomes of sharing letters. They also studied the opinions of consultants on letter-sharing. The results were few old age psychiatrists shared letters with patients or carers, and many had concerns about this practice. In contrast, letters were considered 'very welcome' by 87% of patients and carers who received them, and 81% of those who did not would be 'very pleased' to receive them.

PURPOSE: (1) Describe the challenges facing relatives of persons with stroke in accomplishing their daily activities and social roles (participation). (2) Reflect on the role of rehabilitation for relatives and ethical issues that may emerge following the adoption of a family-centred approach.