Pediatric nursing

Background: The number of children with complex health care needs continues to rise and they often have prolonged hospital stays with their discharge home being delayed by a range of factors. These delays occur despite the fact that, except in extraordinary circumstances, a child's home is the most appropriate place for them to receive long-term care.

Objective: To know the experiences of family members of children with cystic fibrosis under the light of the theory of Callista Roy.

Method: Qualitative research that used the adaptation theoretical framework of Callista Roy for inductive content analysis. Fifteen family members, in a university hospital, between 23 and 63 years old, participated in the study, from September to October 2018.

Background: To deliver quality healthcare to diverse patients, effective commmunication is key. Little evidence exists about what factors influence nurse-to-parent communication in culturally sensitive pediatric care. Objective: The aim of this study was to explore factors that influence nurse-to-parent communication in the provision of culturally sensitive pediatric care. Design: This study employed a qualitative content analysis.

Objective: To report the experience of the training in home parenteral nutrition (PN) directed to family members of children and adolescents participating in a multidisciplinary intestinal rehabilitation program of a tertiary public hospital.

Objectives: to understand the meanings assigned by family caregivers about children's chronic disease diagnosis

Methods: qualitative study, which used as theoretical framework the Symbolic Interactionism, and methodological, the Grounded Theory. It was held in a pediatric unit in Southern Brazil, in 2016, through interviews submitted to open and axial analysis, with the participation of 20 family caregivers of hospitalized children.

Objective: To compare the communication experiences and preferences of racial/ethnic minority and non-Hispanic white (NHW) families in the pediatric intensive care unit (PICU), including their interactions with bedside nurses.

Objective: Identify the knowledge of family members of children and adolescents with cancer about their legal rights, difficulties, and concessions to ensure them. Methods: Quantitative study, survey type, of intersectional design. A questionnaire drawn up by the researchers was applied in order to characterize the minor and their family and also to identify the family's knowledge about legal rights. Descriptive statistics were used to analyze data.

The article reviews the web site www.youngcarer.com. Young carers have specific needs that are not being met and this initiative provides information advice and training to anyone who works with young carers and their families. The website provides an online forum for those working with young carers, sharing ideas and experiences and identifying scope for collaborative project work.

A PIONEERING NURSE is at the forefront of a programme to help improve the physical and mental health of young carers. The article focuses on Laura Ulyatt, a young carers' health nurse in Oxfordshire, England.