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Qualitative studies

A reflection on the application of grounded theory in the exploration of the experiences of informal carers

The aim of this paper is to reflect on the application of a qualitative research method that presents novice researchers with a variety of challenges. It is suggested that prospective users of the grounded theory method should seek guidance from experts in the field. However, to find these experts has proved to be quite challenging. The research topic lends itself to a qualitative study in general using the grounded theory method in particular. 

Thu, 07/20/2017 - 15:12

Employment and coping strategies in carers of people with young onset dementia

Background and objectives Research into carers of people with young onset dementia (YOD) has highlighted that carers may experience more distress than late onset dementia (LOD) carers (e.g. Freyne, Kidd, Coen & Lawlor, 1999), and have specific needs which differ from those of LOO carers (e.g. Svanberg, Spectar & Slott, 2011). Difficulties with employment has been raised as a particular issue for this population (e.g. van Vliet, de Vugt, Bakker, Koopmans & Verhey, 2010), yet no qualitative study has examined the factors influencing carers' experience of employment.

Thu, 07/20/2017 - 15:12

Ecomapping: an innovative research tool for nurses

AIM: This paper explores the use of ecomaps as a research tool for capturing data, using the example of the dynamic nature of social networks from which informal carers of people living with motor neurone disease draw their support. BACKGROUND: The need for social support in relation to health maintenance and disease management has been identified in the literature but little has been published about ways to investigate support networks.

Thu, 07/20/2017 - 15:11

Support for carers of people with dementia during hospital admission

The aim of this study was to help develop support services for carers of people with dementia on admission to a district general hospital. Qualitative methodology was used in the form of individual semi-structured interviews. These interviews suggest that service developments need to take into account the individual need of each carer. Identified themes included communication, vulnerability of the carers and the need to develop a therapeutic relationship with the carer as well as the person with dementia.

Thu, 07/20/2017 - 15:11

'Just Helping': children living with a parent with young onset dementia

Objectives: While the consequences of caring for younger people with dementia have been a growing area of research, little is known about the children of these individuals. This study aimed to discover whether children of younger people with dementia can be compared to other young carers, the impact of their caring on mood, burden and resilience and what could promote coping. Method: In-depth interviews were carried out with 12 participants aged 11-18. A grounded theory methodology was used, supplemented with three quantitative measures.

Thu, 07/20/2017 - 15:11

Access to health and social care services and information

Aim: The aim of this study was to explore carers' perceptions of their ability to access a range of health and social care services, including information about the services. Method: A total of 151 participants, who were all members of a charity set up and run by informal carers of people with learning disabilities, were given semi-structured questionnaires, which yielded qualitative and quantitative data. Further data came from two focus groups.

Thu, 07/20/2017 - 15:10

An emotive subject: insights from social, voluntary and healthcare professionals into the feelings of family carers for people with mental health problems

Caring for people with mental health problems can generate a whole range of positive and negative emotions, including fear, disbelief, guilt and chaos as well as a sense of purpose, pride and achievement. This paper explores the emotions of family carers from the perspectives of social, voluntary and healthcare professionals. Sixty-five participants were interviewed, the sample included directors, managers and senior staff from social, voluntary and healthcare organisations. Participants were encouraged to talk in detail about their understanding of the emotions of family carers.

Thu, 07/20/2017 - 15:10

Quality time: professional care for informal carers of community-living older persons with dementia...Fourth European Nursing Congress

The use of physical restraints is still common practice in the care for the elderly in various settings in Europe, Asia and the USA. Physical restraints can be defined as any limitation in an individual’s freedom of movement by using measures or equipments such as belts, and chairs with a locked table. Prevalence estimates of restraint use range from 20% to more than 60% (including restrictive bedrails, belts, deep or overturned chairs, chairs with a table). In most cases physical restraints are used as safety measures, mainly for the prevention of falls.

Thu, 07/20/2017 - 15:09

Systematic review of respite care in the frail elderly

Objectives: To assess the effectiveness and cost-effectiveness of breaks in care in improving the well-being of informal carers of frail and disabled older people living in the community and to identify carer needs and barriers to uptake of respite services.

Data sources: Major electronic databases were searched from the earliest possible date to April 2008.

Thu, 07/20/2017 - 15:09

An exploration looking at the impact of domiciliary and day hospital delivery of stroke rehabilitation on informal carers

Objectives: To explore the impact of two methods of post-hospital stroke rehabilitation on both carers' perceptions of the health services offered and their quality of life.

Setting: East Dorset Health Authority.

Subjects: Forty-six informal carers were recruited from a sample of 106, initially identified from stroke patients participating in a larger randomized controlled trial.

Design: Qualitative methods.

Thu, 07/20/2017 - 15:09