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quality of life

Quality of Life and Socioeconomic Status: A Comparative Study among Mothers of Children with and without Disabilities in Saudi Arabia

Background: A child's disability affects not only that child but also their caregivers. This study compares the quality of life (QoL) of Saudi mothers (primary caregivers) of children with Cerebral Palsy (CP) and Down Syndrome (DS) and mothers whose children do not have a disability, and explores its relationship with socioeconomic status. Methods: Two hundred mothers of children with disabilities and 99 mothers of children without disabilities were recruited from rehabilitation centers and regular schools, respectively.

Wed, 12/28/2022 - 23:47

Quality of Life of Caregivers of Children With Glaucoma in an Arab Population: A Cross-Sectional Study

Background: To evaluate the quality of life (QoL) measures of caregivers of children with glaucoma using the Caregiver's Congenital Glaucoma Quality of Life (CarCGQoL) questionnaire. Materials and Methods: This was a cross-sectional study undertaken at King Khaled Eye Specialist Hospital, Riyadh, Saudi Arabia. QoL of the caregivers, the main outcome, was assessed using the 20-item CarCGQoL questionnaire. Raw QoL scores of caregivers were converted to Rasch-calibrated interval level scores.

Wed, 12/28/2022 - 23:10

Counting the Burden: Atopic Dermatitis and Health-related Quality of Life

Atopic dermatitis is the most prevalent chronic inflammatory skin condition globally. The burden of atopic dermatitis on children and adults is extensive and there is also significant impact on the lives of patient caregivers and family members. It is important to be able to measure this impact to inform clinical decisions and to plan appropriate patient and carer support.

Wed, 12/28/2022 - 23:02

Effect of autism on parental quality of life in Arar city, Saudi Arabia

Background: The quality of life (QOL) of the families of children with autism is lower than that of families of normal children or children with other disabilities. The study's aim was to describe the severity of effect on the domains of the QOL of caregivers of autistic children and to identify the characteristics of caregivers and children associated with impaired QOL.

Wed, 12/28/2022 - 22:46

Burden Among Parents of Children With Cancer in Jordan: Prevalence and Predictors

Background: A diagnosis of cancer in children affects the children themselves and their entire family. Cancer treatment places parents under continuous stress and increases their life burdens.; Objective: The aim of this study was to assess the burden level and predictors as perceived by Jordanian parents of children with cancer. Methods: A cross-sectional survey design was used to conduct the study in 2 hospitals. A sample of 264 parents of children with cancer was recruited.

Wed, 12/28/2022 - 22:09

Family Impact of Child Oro-Facial Cleft

Wed, 12/28/2022 - 19:16

Impaired Health-Related Quality of Life in Children and Families Affected by Methylmalonic Acidemia

An understanding of health related quality of life (HRQoL) in children and families affected by methylmalonic acidemia (MMA) is important in planning counseling and therapeutic intervention. Liver transplantation (LT) is used as a treatment for MMA; however, its risks and benefits continue to be investigated. The purpose of this study was twofold: (1) to measure HRQoL in children and families affected by MMA using the Pediatric Quality of Life Inventory (PedsQL™) parent version, and (2) to assess the impact of LT on HRQoL by comparing LT and non-LT patient scores and free responses.

Wed, 12/21/2022 - 11:13

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