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Research methodology

Repetitive Negative Thinking: The Link Between Caregiver Burden and Depressive Symptoms

Purpose/Objectives: To explore whether repetitive negative thinking (RNT) mediates the pathway between subscales of caregiver burden and depressive symptoms. Design: Cross-sectional pilot study. Setting: Bone marrow unit at the University of Louisville Hospital in Kentucky and caregiver support organizations in Louisville. Sample: 49 current cancer caregivers who were primarily spouses or partners of individuals with lymphoma or leukemia and provided care for a median of 30 hours each week for 12 months.

Wed, 10/31/2018 - 15:10

Benefit finding for Chinese family caregivers of community‐dwelling stroke survivors: A cross‐sectional study

Aims and objectives: To identify whether benefit finding is a mediator or moderator in the relationship between caregiver burden and psychological well‐being (anxiety and depression) in Chinese family caregivers of community‐dwelling stroke survivors. Background: Family caregivers not only bear a heavy burden, a high level of anxiety and depression, but also experience benefit finding (positive effects result from stressful events).

Wed, 10/31/2018 - 14:49

Shared decision-making in dementia care planning: barriers and facilitators in two European countries

Background: Shared decision-making (SDM) is a means of allowing people with dementia to take part in making choices, be autonomous and participate in social activities. Involving them in SDM is an important way of promoting social health. However, including families and dementia residents in decision-making can be challenging for care staff working in nursing homes. The objective of this study was to identify barriers and facilitators regarding the implementation of an SDM framework for care planning in two nursing homes, one in Italy and one in the Netherlands.

Wed, 10/31/2018 - 14:17

A qualitative study of older adults’ and family caregivers’ perspectives regarding their preoperative care transitions

Aims and objectives: To explore how older patients with multiple chronic conditions and their family caregivers perceive their engagement and overall care experience throughout the preoperative phase of elective orthopaedic hip or knee joint replacement. Background: Patient engagement is a critical component of care necessary for improving patient outcomes.

Fri, 10/26/2018 - 16:54

Spirituality among family caregivers in palliative care: an integrative literature review

Background: Family caregivers experience spiritual and existential concerns while caring for their terminally ill family members. Aim: To evaluate and synthesise studies on spirituality among family caregivers in palliative care. Design: An integrative literature review of peer-reviewed articles published between 2000 and 2016. Sample: Participants were family caregivers (parents, spouses, relatives or friends) caring for an adult (age>18 years) family member with a terminal illness in a palliative care setting.

Wed, 10/24/2018 - 10:31

Longitudinal Changes in and Modifiable Predictors of the Prevalence of Severe Depressive Symptoms for Family Caregivers of Terminally Ill Cancer Patients over the First Two Years of Bereavement

Background: Bereaved families endure tremendous grief. However, few studies have longitudinally investigated caregivers' bereavement grief for more than one year postloss and none is from family-oriented Asian countries. Objectives: We explored longitudinal changes in and modifiable predictors of severe depressive symptoms for Taiwanese family caregivers of terminally ill cancer patients over the first two years postloss.

Wed, 10/24/2018 - 10:07

Developing a complex intervention programme for informal caregivers of stroke survivors: The Caregivers' Guide

Background Stroke affects the entire family system. Failure to meet the needs of caregivers leads to physical and mental overburdening. Stroke caregivers may benefit from professional support. The literature reviews have shown that there is still no clarity concerning the most appropriate set-up of a support programme. In Germany, there is no stroke caregiver support programme that operates throughout the course of rehabilitation. Aim The aim was to develop a complex intervention programme for stroke caregivers in North-Rhine Westphalia, Germany.

Wed, 10/24/2018 - 09:12

‘It’s Like Chicken Talking to Ducks’ and Other Challenges to Families of Chinese Immigrant Older Adults in Long-Term Residential Care

Immigrant older adults are increasingly moving into long term residential care (LTRC) homes; however, most were designed and continue to be run in accordance with Anglocentric norms and values. Participation and interest in Family Councils—through which they might collectively voice concerns—was low within our purposive sample of nine Chinese-origin residents living in LTRC homes and 11 family carers.

Tue, 10/23/2018 - 11:46

Caregiver Perspectives About Using Antipsychotics and Other Medications for Symptoms of Dementia

Background and Objectives: To avoid "chemical restraints," policies and guidelines have been implemented to curb the use of medications for behavioral and psychological symptoms of dementia (BPSD). Antipsychotics have been particularly targeted because of their rare severe side effects. Consequently, caregiver directed non-pharmacologic therapies have increased while medication use for BPSD has diminished. Despite such initiatives, however, antipsychotics continue to be prescribed "off-label" for roughly 20% of nursing home patients.

Mon, 10/22/2018 - 14:59

Effects of Methicillin-Resistant Staphylococcus aureus/Multiresistant Gram-Negative Bacteria Colonization or Infection and Isolation Measures in End of Life on Family Caregivers: Results of a Qualitative Study

Background: Little is known about the experiences of family caregivers of hospitalized patients with confirmed methicillin-resistant Staphylococcus aureus/multiresistant gram-negative bacteria (MRSA/MRGN) diagnosis at the end of life. The study at hand is a subproject of an interdisciplinary cooperation project that aims at developing a patient-, family-, and team-centered approach in dealing with MRSA/MRGN-positive hospitalized patients in palliative and geriatric care.

Fri, 10/19/2018 - 15:33