Short break care

Independent assessment and access to direct payments are among the new rights accorded to carers under the Carers and Disabled Children Act 2000.

This article describes the development of a new service for people with dementia and their carers in a large post-industrial city in the north of England, UK. The service arose in response to the perceived inadequacies of existing respite care provision and has proved very successful in meeting the needs of people with dementia and their family carers, and in providing high levels of job satisfaction for staff. The success of the initiative can be understood using the Senses Framework and relationship-centred care as an analytic lens to identify key attributes of the service.

This article canvases the diagnosis and treatment of Alzheimer's disease (AD), and proposes a holistic support regime for patients, carers and families.  The development of services for Alzheimer's patients and their families in the Nelson Mandela Metropole since 1991 is outlined.  Based on the expressed needs of families of AD sufferers specific support systems were identified, fund raising undertaken and projects initiated to offer respite to those in need of assistance.  The article offers insights into the nature and treatment of AD and how, based on a query from a single family, a syst

Reviews policy trends for informal carers which have been implemented in various countries between 1996 - 1998. The article focuses on respite care and direct payments for carers of older ill and disabled adults.

This draft guidance will update and replace guidance issued in 1996. The main purpose of the consultation is to help local service planners improve respite provision in line with the overall principles of enabling self care and working with carers as partners in care by improving respite planning, shifting the balance towards preventative support, and personalising support to improve outcomes both for carers and those with care needs.

While many people with dementia require institutional care, having a co-resident carer improves the likelihood that people can live at home. Although caregiving can have positive aspects, carers still report a high need for respite. Despite this need, the use of respite services for carers of people with dementia is often low. This article investigates carer beliefs regarding out-of-home respite services and why some carers do not utilise them.

In this video we meet Jim and Janet Swift, both keen travellers until Janet was diagnosed with dementia at the age of 58. Jim’s account of their experience illustrates the widespread effect of a very rapid deterioration, and explores the sense of loss and loneliness that can be part of the caring role. His account also highlights the need for skilled, experienced support for carers – in this case provided by an Admiral Nurse – together with access to regular breaks from the caring role.