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Statistical data

Living with an aging parent: "It was a beautiful invitation"

In the United States and globally, increasing numbers of older parents are living with their adult children. Making the decision to live together requires careful thought and planning; particularly when the decision means the children will be responsible for their elder parents’ care, the physicians of all parties should be consulted. More than one-third of caregivers state that they seek advice from their physician or other clinician when information is needed about this transition.

Thu, 07/20/2017 - 15:11

What really matters: an inquiry into the relative importance of dimensions of informal caregiver burden

Objective: Prevailing measures of subjective caregiver burden either have no overall summary score or do not consider the relative importance caregivers attach to different dimensions of burden. Our aim was to assess which dimensions informal caregivers perceive as being important to their overall burden from care giving.

Design: Cross-sectional.

Thu, 07/20/2017 - 15:11

A study of the carers strategy (2000): supporting carers in Wales

The Carers Strategies in England and Wales herald opportunities to develop new ways to support carers. This paper reports findings from a five-year study looking at the Carers Strategy in Wales. It presents interview data arising from fieldwork with carers and statutory and voluntary sector staff. Our findings highlight a gap between the positive perceptions of staff concerning improvements in the availability and types of support to carers and carers' everyday experiences.

Thu, 07/20/2017 - 15:11

A systematic review of the effectiveness and cost-effectiveness of different models of community-based respite care for frail older people and their carers

To review the evidence for different models of community-based respite care for frail older people and their carers, where the participant group included older people with frailty, disability, cancer or dementia. Where data permitted, subgroups of carers and care recipients, for whom respite care is particularly effective or cost-effective, were to be identified.

Thu, 07/20/2017 - 15:11

Support network transformations in the first stages of the caregiver's career

The purpose of this article is to propose a method to facilitate analysis of the processes involved in the transformation of support networks for caregivers of persons with dementia. The authors are particularly interested in the preliminary phases of the caregiver's career: the initial period ranging from the first manifestations of dementia to the confirmation of a diagnosis. This method combines the social network approach with narratice analysis.

Thu, 07/20/2017 - 15:11

Carers

Findings from a survey in 2000 ['Carers 2000', Joanne Maher and Hazel Green] and the 2001 census have revealed the extent of unpaid caring for family members and friends and the effects on the carers. 

Thu, 07/20/2017 - 15:11

Caregiver-coping in bipolar disorder and schizophrenia: a re-examination

Background: The caregiving experience has been extensively investigated in some chronic/severe mental illnesses such as schizophrenia. These studies have suggested that illness variables and situational/personal characteristics of caregivers have a significant influence on how caregivers cope with mental illness. However, other similar conditions, e. g. bipolar affective disorder (BPAD), have been relatively neglected in this regard. This study attempted to compare caregiver-coping in BPAD and schizophrenia and to explore the determinants of such coping.

Thu, 07/20/2017 - 15:10

Preference for place of care and place of death in palliative care: are these different questions?

Place of death is at times suggested as an outcome for palliative care services. This study aimed to describe longitudinal preferences for place of care and place of death over time for patients and their caregivers. Longitudinal paired data of patient/caregiver dyads from a prospective unblinded cluster randomised control trial were used. Patients and caregivers were separately asked by the palliative care nurse their preference at that time for place of care and place of death.

Thu, 07/20/2017 - 15:10

REMCARE: reminiscence groups for people with dementia and their family caregivers - effectiveness and cost-effectiveness pragmatic multicentre randomised trial

Objectives: The aim of the REMiniscence groups for people with dementia and their family CAREgivers (REMCARE) study was to assess the effectiveness and cost-effectiveness of joint reminiscence groups for people with dementia and their family caregivers as compared with usual care.

Thu, 07/20/2017 - 15:10

Who cares? A comparison of informal and formal care provision in Spain, England and the USA

This paper investigates the prevalence of incapacity in performing daily activities and the associations between household composition and availability of family members and receipt of care among older adults with functioning problems in Spain, England and the United States of America (USA).

Thu, 07/20/2017 - 15:10