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Stigma

Known by the Children’s Condition: Associative Stigma Among Family Carers of Children with Cerebral Palsy

Background: The experience of associative stigma (stigma that persons experience because they are associated with persons who belong to a stigmatized category in society) could have negative impacts on carers’ and children’s health and well-being. This descriptive qualitative study therefore focused on associative stigma among family carers of children with cerebral palsy (CP) in the Greater Accra Region of Ghana. Methods: Using the convenience sampling technique, sixty-one family carers were purposively recruited to participate in the study.

Thu, 09/01/2022 - 15:57

Perceptions and experiences of dementia and its care in rural Kenya

Objectives: We aimed to explore the perceptions towards dementia and related care across three stakeholder groups in rural Kenya. Methods: A total of 38 key stakeholders (carers of persons with dementia, health care providers and the general public) participated in focus group discussions. Additional five individual interviews were held with carers. Thematic analysis was used to analyse the data.

Wed, 08/31/2022 - 13:48

A qualitative investigation into family carers' experiences of living with/caring for a person with young-onset dementia

Background: Ageing is a significant risk factor for developing dementia; however, some people develop symptoms before the age of 65. Although less common, it is referred to as young-onset dementia. Estimating prevalence rates in Ireland is difficult, as there has been little study around what it is like to live with/care for this cohort; consequently, it is poorly understood. Methods: Nine primary carers were interviewed using semi-structured one-to-one interviews. Interview data were analysed with inductive thematic analysis.

Wed, 08/03/2022 - 17:32

Mental Health and Neurodevelopmental Disorders: Examining the Roles of Familism, Social Support, and Stigma in Latinx Caregivers

Background: Those caring for someone diagnosed with a neurodevelopmental disorder are at risk of experiencing depression and anxiety. However, limited research has examined risk and predictive factors associated with internalizing symptomatology in caregivers from ethnic and culturally diverse backgrounds. Aims: We aimed to identify predictive factors for internalizing symptomatology.

Wed, 06/08/2022 - 14:53

Impact of relative mental illness on caregivers

Introduction: Belarus is undergoing legislative shifts towards community-based mental health care. Responding effectively to support this process requires an understanding of the experiences and challenges facing families caring for a relative affected by mental illness. Objectives: To identify how caring for a person with severe mental illness impacts on family carers, and what carers identify as their support needs.

Sun, 06/05/2022 - 17:02

Development of a family resiliency model to care of patients with schizophrenia

Background: Families who care for schizophrenia suffer stress and lose the ability to treat. Family stress can be mediated by resilience. Objective: This study aimed to develop a family resilience model based on family‐centred nursing for persons with schizophrenia. Methods: This study used a mixed‐method cross‐sectional approach. The population was a family of caregivers for persons with schizophrenia at Mental Hospital in Surabaya, Indonesia. The respondents were 137 families recruited by simple random sampling.

Tue, 02/08/2022 - 16:40

Dementia awareness, beliefs and barriers among family caregivers in Pakistan

Objectives: Dementia research and services in Pakistan are limited. The following was explored in experiences of family caregivers of people with dementia in Pakistan: (a) to determine whether culture and religion play a role in caregiving; (b) to draw insights on how family caregivers cope, what barriers they face and what help they would be willing to accept and (c) to determine how these findings could be used to raise awareness and influence public policies in improving the lives of families living with dementia.

Wed, 02/02/2022 - 14:44

Dementia and revivalist Islam: New perspectives to understanding dementia and tackling stigma

Background: The notion of stigma and its influence on the understanding of dementia has commonly been recognized as a great challenge to seeking healthcare services for South Asians in England. Aim: The aim of this commentary is to examine how Muslims view, understand and tackle dementia stigma in the context of revivalist Islam, especially among Bangladeshi Muslims within their British communities.

Wed, 02/02/2022 - 14:38

Stigma associated with parental depression or cancer: Impact on spouse and offspring's cortisol levels and socioemotional functioning

Stress associated with caring for a mentally ill spouse can adversely affect the health status of caregivers and their children. Adding to the stress of caregiving is the stigma often placed against spouses and children of people with mental illness. Contrary to mental illness, many physical disorders such as cancer may be less stigmatized (expect pulmonary cancer).

Tue, 04/13/2021 - 11:27

Stigma and burden of mental illness and their correlates among family caregivers of mentally ill patients

Background and objectives Family caregivers play a curial role in supporting and caring for their mentally ill relatives. Their struggle for facing stigma and shouldering caregiving burden is marginalized, undervalued, and invisible to medical services. This study assessed the stigma and burden of mental illnesses, and their correlates among family caregivers of mentally ill patients. Methods A cross-sectional study design was used to collect data from 425 main family caregivers of mentally ill patients at Assiut University Hospital.

Tue, 04/13/2021 - 11:22

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