Symptom control

Background: The interest in outcome measurement in pediatric palliative care is rising. To date, the majority of studies investigating relevant outcomes of pediatric palliative care focus on children with cancer. Insight is lacking, however, about relevant outcome domains for children with severe neurological impairment and their families.

Aim: The aim of this study was to identify meaningful outcome domains of pediatric palliative care for children with severe neurological impairment and their families.

Aims and objectives: To understand the influence of family caregivers' perceptions about patients' dying and death quality on their grief intensity. Background: Dying patients and their family caregivers face life-limiting illness together, and they work jointly to negotiate shared understandings and mutual adaptation to losses. Methods: Cross-sectional data were collected via an online survey. The manuscript followed the STROBE report guideline. Methods: Family caregivers of patients who had died within 8–365 days prior were recruited.