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Measuring carer burden in informal carers of patients with long-term conditions

Introduction: The aim of this literature review is to identify the most common tools used to measure burden in carers of people with Parkinson's disease (PD), heart failure (HF), multiple sclerosis (MS) and chronic obstructive pulmonary disease (COPD). Method: Databases such as Medline, PsycINFO, CINAHL and Academic Search Complete were searched. Studies in which carer burden was measured were included.

Wed, 04/10/2019 - 14:58

The views of relatives of young people with psychosis on how to design a Relatives Education And Coping Toolkit (REACT)

Background: Relatives of people with psychosis experience high levels of distress. Interventions are needed which can reduce distress and are widely available.

Aims: This study presents the views of relatives on how to design a supported self-management intervention for relatives.

Thu, 07/20/2017 - 15:15

Making it real for carers

Making it Real for Carers explores what each Making it Real theme means to carers and what this might look like in practice. It has been coproduced with carers and organisations including the Carers Trust and ADASS following a series of workshops across England. 

The template below provides a guide to the approach that could be taken when looking at what's working and what needs improving in relation to Making it Real for Carers. Many organisations will have their own business planning processes and frameworks and this can be used as a checklist to inform those.

Thu, 07/20/2017 - 15:14