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Young carers

Global Perspective on Children's Unpaid Caregiving in the Family

This article provides the first cross-national review and synthesis of available statistical and research evidence from three developed countries, the UK, Australia and the USA, and from sub-Saharan Africa, on children who provide substantial, regular or significant unpaid care to other family members (‘young carers/caregivers’). It uses the issue of young carers as a window on the formulation and delivery of social policy in a global context.

Thu, 07/20/2017 - 15:21

Change and Adaptation in Families with Young Carers

Using grounded theory methodology, members of nine families with 'young carers' were interviewed to explore their experiences of caring. A dynamic theory of change and adaptation emerged in relation to changes in who cares within families, in external support and in the attitudes of young carers towards caring. Adaptations included becoming used to the way life is, knowing how to care, balancing and trading off, rewarding care, and anticipating future adaptations. A model has been developed to offer an explanation of factors which influence young caring in families.

Thu, 07/20/2017 - 15:20

The nature of caregiving in children of a parent with multiple sclerosis from multiple sources and the associations between caregiving activities and youth adjustment overtime

This study explored youth caregiving for a parent with multiple sclerosis (MS) from multiple perspectives, and examined associations between caregiving and child negative (behavioural emotional difficulties, somatisation) and positive (life satisfaction, positive affect, prosocial behaviour) adjustment outcomes overtime. A total of 88 families participated; 85 parents with MS, 55 partners and 130 children completed questionnaires at Time 1. Child caregiving was assessed by the Youth Activities of Caregiving Scale (YACS).

Thu, 07/20/2017 - 15:20

Children and Adolescents Providing Care to a Parent with Huntington's Disease: Disease Symptoms, Caregiving Tasks and Young Carer Well-Being

Background: Over 30,000 people in the U.S. have Huntington’s disease (HD), a disorder with numerous complicated, long-lasting and stigmatizing symptoms. Caregiving typically falls to the family, yet little is known about the caregiving experience of children and adolescents in the home.

Thu, 07/20/2017 - 15:20

Health of young and elderly informal carers : analysis of UK census data

Concern has been mounting about the health and welfare of people who provide informal care for family or friends with chronic illness. In particular, young and elderly people - vulnerable groups in their own right - may be carrying a heavy burden. The extent of the problem is not well known because estimates have been pieced together from ad hoc local studies and household sample surveys. These estimated that young carers in the United Kingdom numbered between 10,000 and 50,000, and that about one in 20 older people in Great Britain spent long hours caring for sick family members.

Thu, 07/20/2017 - 15:19

Young carers in the UK: the 2004 report

This is the report of the third national survey of young carers who are being supported by specialist young carers projects across the UK. Throughout the report, where appropriate and for comparison, we refer to the two previous surveys conducted in 1995 and 1997 (Dearden and Becker, 1995, 1998). The 2004 Report is based on data collected from 87 projects concerning a total of 6,178 young carers – the largest survey of its kind. 

Thu, 07/20/2017 - 15:18

Listening to the voices of young carers using Interpretative Phenomenological Analysis and a strengths-based perspective

The 2011 census suggested that 244,000 young people in England and Wales under 19 provide unpaid care for someone with an illness or disability (Office for National Statistics, 2013). Young carers are not a homogeneous population; they represent children and young people from a variety of backgrounds with diverse experiences. Young carers are described as a 'hidden population' (H.M Government, 2010) hence the prevalence of young carers may be larger than data sources reveal.

Thu, 07/20/2017 - 15:18

Young carers in their own words

An estimated 50,000 children in Britain today regularly take on the hard work and responsibility of caring for a relative who is ill or disabled. These ‘young carers’ were, until recently, a hidden and neglected group in society, unacknowledged and unsupported. There are now over 100 young carers projects throughout Britain, and the Government’s National Carers Strategy document outlines a series of commitments designed to improve young carers’ lives.

Thu, 07/20/2017 - 15:17

Caring about carers: only half the picture

This article examines the government's strategy for carers and considers its significance for people in informal caring relationships. It argues that although it contains important and innovative measures, the strategy does not address adequately the complex nature of caring relationships nor does it take account of the perspectives of people who receive care. There is a danger, therefore, that the strategy will be divisive. However, the recognition that caring is a widespread activity is welcomed.

Thu, 07/20/2017 - 15:17

Children caring for their “caregivers”: exploring the caring arrangements in households affected by AIDS in Western Kenya

Reflecting dominant understandings of childhood, many researchers describe orphans as an emotional and financial cost to the households in which they live. This has created a representation of orphans as a burden, not only to their fostering household, but also to society. This article seeks to challenge this representation by exploring children's contributions to their fostering households.

Thu, 07/20/2017 - 15:17