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Choice or chore? Carers' experiences of direct payments

Report using carers' experiences to assess the effectiveness and value of the direct payments system and make recommendations for improvements.

Thu, 07/20/2017 - 15:10

Preferences for place of care and place of death among informal caregivers of the terminally ill

Objectives: (1) To determine informal caregivers perceptions about place of care and place of death; and (2) to identify variables associated with a home death among terminally ill individuals who received in–home support services in a publicly funded home care system.

Thu, 07/20/2017 - 15:10

Older people - recipients but also providers of informal care: an analysis among community samples in the Republic of Ireland and Northern Ireland

Data on both the provision and receipt of informal care among populations of older adults are limited. Patterns of both informal care provided and received by older adults in the Republic of Ireland (RoI) and Northern Ireland (NI) were evaluated. A cross-sectional community-based population survey was conducted. Randomly selected older people (aged 65+, n = 2033, mean age (standard deviation): 74.1 years (6.8), 43% men, 68% response rate) provided information on the provision and receipt of care, its location, and the person(s) who provided the care.

Thu, 07/20/2017 - 15:10

Quality of life among older people in Sweden receiving help from informal and/or formal helpers at home or in special accommodation

The present study describes and compares quality of life (QoL) and factors which predict QoL among people aged 75 years and over who receive help with activities of daily living (ADLs) from formal and/or informal helpers. The subjects were living at home or in special accommodation in Sweden. A postal questionnaire was sent to a randomly selected and age-stratified sample of 8500 people. The response rate was 52.8% (n = 4337), and 1247 people [mean age (± SD) = 86.4 ± 5.9 years] received help and indicated who helped them with ADLs.

Thu, 07/20/2017 - 15:10

Exploring comprehensibility and manageability in palliative home care: an interview study of dying cancer patients' informal carers

The presence of an informal carer is often a prerequisite for successful palliative home care, and the staff's ability to support informal carers' coping in such situations is important. Recent research has revealed that it is possible to achieve positive psychological states in palliative care despite the burdening situation.

Thu, 07/20/2017 - 15:10

Carer break or carer-blind? Policies for informal carers in the UK

This article examines three policy statements on informal carers published in the UK in 1999—the National Strategy for Carers, the report of the Royal Commission on Long Term Care and the note of dissent by two members of the Royal Commission. These three documents contain two rather different approaches to policy for carers. On the one hand, the National Strategy and note of dissent emphasize respite care or short-term breaks for carers, and are concerned with sustaining the well-being of carers as well as ensuring the continuation of caring itself.

Thu, 07/20/2017 - 15:10

The impact of intermediate care: the carer's perspective

Aims: The worldwide phenomenon of an ageing population has considerable consequences for health and health care; leading to greater demand for long-term care and support from families for older relatives. In the UK this, together with the preference for dependent older people to be cared for in the community, has led to the growth of intermediate care services (ICS) that bridge hospital and home offering rehabilitation and care. However, there has been limited in-depth exploration of carer perspectives of these services.

Thu, 07/20/2017 - 15:10

A helping hand for carers

Beccy Sims reports on the government's efforts to provide better help and support for the country's 5.2 million carers.

New government strategy to support informal carers, especially carers of older people. The principles of the strategy and the number of people providing informal care are discussed.

Thu, 07/20/2017 - 15:10

Service-user and carer perspectives on compliance and compulsory treatment in community mental health services

This paper reports on a qualitative study analyzing service-user (SU) and carer perspectives on medication compliance and their experience of compulsory treatment. Eleven SUs and eight carers were interviewed. The research is set against the background of changes to mental health legislation in England, in the form of Supervised Community Treatment. This signals a change in community mental health practice and urges a reconsideration of concepts such as compliance, concordance and coercion.

Thu, 07/20/2017 - 15:10

Who cares in England and Wales? The Positive Care Law: cross-sectional study

Background: The inverse care law proposing that medical services are distributed inversely to population health needs, and that this law operates more completely where medical care is most exposed to market forces, was first suggested by Tudor Hart in 1971. This paper considers whether an inverse care law can be observed for the provision of informal care as well as for medical care.

Aim: Using data from the 2001 census we sought to investigate the contemporary relevance of the inverse care law.

Thu, 07/20/2017 - 15:09