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Using the life course perspective to study the entry into the illness trajectory: the perspective of caregivers of people with Alzheimer's disease

The research community is showing increasing interest in the analysis of the care trajectory of people with chronic health problems, especially dementias such as Alzheimer's disease. However, despite this interest, there is little research on the initial phases of the care trajectory. The fact that the first symptoms of dementia are generally noticed by those surrounding the elderly person suggests that the recognition of the disease is intimately linked to interactions not only amongst family members but also amongst friends, neighbours and health professionals.

Thu, 07/20/2017 - 15:18

Complementary therapy services for mental health service users: results of a consultation project

Objective The aim of this paper is to report on the findings of a consultation project exploring demand for mental health related complementary therapy services in the local area.

Thu, 07/20/2017 - 15:18

Hidden patients: The relatives of patients in need of palliative care

Background: When identifying patients for palliative care, medical specialists find it necessary to disclose “hidden” patients: the patient's relatives. The issue has been discussed sporadically in Bulgaria; the present study was part of a larger investigation that examined the opinion of medical specialists, patients, and their relatives.

Thu, 07/20/2017 - 15:18

What does the 2011 Census tell us about the "oldest old" living in England & Wales?

In August 2013 the Office for National Statistics published a short story focusing on usual residents of England & Wales aged 65 or over: What does the 2011 Census tell us about older people? . This report continues this theme by looking at characteristics of the “oldest old” living in England & Wales, that is those who were aged 85 years or older on Census Day 2011 (who were born before April 1926). Most data published about older people come from household surveys, which exclude people living in institutions .

Thu, 07/20/2017 - 15:18

The use of non-invasive ventilation at end of life in patients with motor neurone disease: A qualitatitve exploration of family carer and health professional experiences

Background: Non-invasive ventilation improves quality and quantity of life in patients with motor neurone disease who have respiratory failure. Use of non-invasive ventilation may, however, result in complex clinical issues for end-of-life care, with concerns as to whether and how it should be withdrawn.

Aim: This study aimed to describe carer and health professional experiences of end-of-life care of motor neurone disease patients using non-invasive ventilation.

Thu, 07/20/2017 - 15:18

Identifying carers' needs in the palliative setting

There are an estimated half a million people in the UK who provide unpaid care for a relative or friend with a life-limiting or terminal illness at any one time. Every year thousands of people take on a caring role, whereas others find that this role has ended. This guide has been developed by an expert working group, and provides a framework for developing a carers’ assessment process. It offers advice on how to identify carers and gives an overview of the assessment methods currently used by palliative care providers.

Thu, 07/20/2017 - 15:18

Dyadic relationship scale: A measure of the impact of the provision and receipt of family care

Purpose: This study evaluated the psychometric properties of the Dyadic Relationship Scale (DRS), which measures negative and positive dyadic interactions from the perspective of both the patient and the family caregiver. An important aspect of evaluating the DRS was that it be statistically sound and meaningful for both members of the dyad. Design and Methods: The study used a cross-sectional design. Survey packages were mailed to home health care patients and their family caregivers.

Thu, 07/20/2017 - 15:18

Burden on caregivers of people with schizophrenia: comparison between Germany and Britain

Background Burden on the relatives of patients with schizophrenia may be influenced not only by patient and caregiver characteristics, but also by differences in mental health service provision.

Aims To analyse whether family burden is affected by national differences in the provision of mental health services.

Thu, 07/20/2017 - 15:18

Caring for family members with chronic physical illness: a critical review of caregiver literature

This article reviews 19 studies (1987–2004) on quality of life for family caregivers helping those with chronic physical illness. Here we explore the concepts of and instruments used to measure caregivers' quality of life. We were particularly interested in understanding stress-related variables and documenting factors influencing quality of life based on family stress theory. Findings show that various positive and negative terms equated with quality of life were used to measure them.

Thu, 07/20/2017 - 15:18

Gender, caring and employment in Britain

Employment and social policies continue to be based upon a gender template that assumes women, especially mothers, are or should be natural carers. Invariably, policies that seek to promote women's entry to paid work do so by facilitating their management and conduct of caring work, thus reinforcing the gender template. In addition, contemporary debates around concepts of citizenship emphasise the obligation to paid employment but fail to tackle the gendered division of caring activities and organisation of care.

Thu, 07/20/2017 - 15:18

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