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The needs of people with dementia living at home from user, caregiver and professional perspectives : a cross-sectional survey

Background: Few reports have been published about differences in perspectives on perceived needs among community-residing people with dementia, their family caregivers, and professionals. The aim of this study was to compare these perspectives.

Thu, 07/20/2017 - 15:16

Carers 2000: results from the carers module of the General Household Survey 2000

This report presents findings from the carers module of the General Household Survey GHS 2000/01. The GHS is a continuous survey based on a sample of the general public resident in private households in Great Britain.

Thu, 07/20/2017 - 15:16

Carers and telecare

By looking at carers’ experiences, this report takes this case forward by exploring in more detail the evidence and opportunities afforded by telecare and telehealth technologies and the barriers to greater take-up.

Thu, 07/20/2017 - 15:16

Care and support for older people and carers in Bradford : their perspectives, aspirations and experiences

This study explored the needs, aspirations and expectations of older people and family carers from a range of ethnic communities in Bradford, regarding both formal paid care provision and help from family, friends and neighbours. The focus was on the accessibility, acceptability, appropriateness and responsiveness of services. The study found cross-cultural similarities as well as cultural specificities in experiences and expectations. 

Thu, 07/20/2017 - 15:16

Learning from experience: involving service users and carers in mental health education and training

Contains a general introduction to the topic and drawing on a range of current initiatives, pointers towards good practice in relation to each of the components of effective involvement. A range of evaluation tools are offered which may be useful in charting progress and identifying the next steps to be taken.

Thu, 07/20/2017 - 15:16

Consumer direction and choice in long-term care for older persons, including payments for informal care: how can it help improve care outcomes, employment and fiscal sustainability?

As the number of older persons in need of long-term care increases, efforts to support older persons remaining in their home are intensified in most OECD countries. In this context of ageing in place, there is a movement towards allowing more individual choice for older persons receiving publicly funded long-term care at home. Having more flexibility in terms of how to receive care can increase the older person’s self-determination and that of his/her informal care givers.

Thu, 07/20/2017 - 15:16

Do they look after their own? Informal support for South Asian carers

Policy on care in the community was founded on the premise that the care of frail elderly people with disabilities would be a joint responsibility for health and social care professionals, and family carers, supported by people within their social networks. The policy assumes that such social networks are common features of all communities in contemporary Britain, containing a reserve of people who can be called upon to provide support to carers.

Thu, 07/20/2017 - 15:16

When and how to initiate discussion about prognosis and end-of-life issues with terminally ill patients

The aim of this study was to explore by whom, how, and when discussions about prognosis and end-of-life issues should be initiated with terminally ill patients, and the context in which these issues can be optimally discussed. Focus groups and individual interviews were conducted with 19 palliative care (PC) patients, 24 carers, and 22 PC health professionals (HPs). Participants had disparate views regarding by whom and when such discussions should be initiated, although a similar range of perspectives was expressed by all participant groups.

Thu, 07/20/2017 - 15:16

The association between caregiving satisfaction, difficulties and coping among older family caregivers

Aims and objectives.  The aim was to study the association between gender, extent and content of care, satisfaction, coping and difficulties in the caregiving situation among older (75+) caregivers and to identify clusters of caregivers. The aim was also to explore psychometrically two instruments assessing satisfaction and difficulties in family caregivers.

Thu, 07/20/2017 - 15:16

Service use in family caregivers of persons with dementia in Belgium : psychological and social factors

This study aims to investigate whether selected social and psychological characteristics of family caregivers of persons with dementia are related to community-based service use in Belgium. Two aspects were distinguished in service utilisation: volume (number of contacts) and diversity (number of services). Within a selected region, dementia caregivers were traced via the detection of persons with dementia known to community health or social services. A probability diagnosis was made with the Geriatric Mental State and the computer algorithm AGECAT.

Thu, 07/20/2017 - 15:16

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