Dementia 2020 Citizens' Engagement Programme: toolkit for engaging people with dementia and carers

A toolkit to help dementia groups and networks gather views and facilitate discussions with people with dementia and their carers as part of the Dementia 2020 Citizens' Engagement Programme. It has been developed to help gather the views of people with dementia and their carers on progress of the implementation of the Department of Health’s Dementia 2020 Challenge, and on how the changes are affecting them. The toolkit provides advice on gathering feedback through one to one conversations, group discussions, and individual surveys; recruiting people for discussion groups; and obtaining consent. Appendices also outline guiding principles organisations implementing the engagement programme should follow, tips on organisation one to one and group discussions, a templates for recording feedback from group discussions; and consent for. The toolkit has been co-produced by Alzheimer's Society, Alzheimer's Research UK, the Dementia Engagement and Empowerment Project (DEEP), Innovations in Dementia and people with dementia and carers on behalf of the Department of Health's Advisory Group for the Dementia 2020 Citizens' Engagement Programme.