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The craft of care: family care of relatives with advanced dementia

Family caregiving is attracting more attention from policy makers and service providers, but managing a chronic condition in the home is a very complex activity that usually remains invisible to health care professionals. The study's purpose was to identify strategies family caregivers used in the home to care for their relatives who have dementia. The author collected data from interviews with 18 caregivers and two health care professionals, and from participant observation in caregivers' support groups and homes. The author used constant comparison analysis and describes the Craft of Care, a category that emerged during qualitative analysis. Caregivers craft care by creating ruses in care, a language to communicate, and spaces and devices for caregiving. They sustain the humanity of the patient in the midst of a condition that tends to destroy it.

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Additional Titles
Qual Health Res

Key Information

Type of Reference
Jour
ISBN/ISSN
1049-7323
Resource Database
Hmic
Publication Year
2005
Issue Number
7
Volume Number
15
Start Page
881-96
Language
English