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  2. "What's going to happen when we're gone?" Family caregiving capacity for older people with an intellectual disability in Ireland

"What's going to happen when we're gone?" Family caregiving capacity for older people with an intellectual disability in Ireland

Background: Changing family sociodemographic factors, increased life expectancy for people with an intellectual disability, deinstitutionalization and policy prioritization of the family as the principal care provider, presents new challenges to care sustainability. Method: A qualitative study design was employed, entailing focus groups and semistructured interviews, with purposive sampling via the parent study population of the Intellectual Disability Supplement to The Irish Longitudinal Database on Ageing. Results: The traditional sociodemographic facilitators of family caregiving are in rapid decline. Families perceived limited support from services and limited future care options. Few future care plans have been formulated. A strong possibility exists of placement of older family members with an intellectual disability in out‐of‐family home care. Conclusion: To anticipate and provide for quality care supports, there is a need to establish proactive initiatives, for both people with an intellectual disability and their families’, to facilitate the early formation of long‐term care plans.

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Key Information

Type of Reference
Jour
Type of Work
Journal article
Publisher
John Wiley & Sons Inc
ISBN/ISSN
1360-2322
Publication Year
2018
Issue Number
2
Journal Titles
Journal of Applied Research in Intellectual Disabilities
Volume Number
31
Start Page
226
End Page
235