Stroke Survivor and Family Caregiver Reports of Caregiver Engagement in Stroke Care

Purpose: The aim of the study was to identify areas of caregiver engagement in stroke care as viewed by stroke survivors and family caregivers.; Design: Interviews with stroke survivor/caregiver dyads (N = 71) from a population-based study of incident stroke.; Methods: We interviewed stroke survivors and caregivers about caregiver involvement at multiple stages of stroke care. We assessed similarities and differences between stroke survivor and caregiver reports and analyzed responses to open-ended questions.; Findings: Stroke survivor and caregiver reports of engagement were highly correlated (r = .89), although caregivers reported higher involvement. Open-ended comments suggested that, in about 25% of cases, stroke survivors and caregivers agreed that caregiver engagement led to major improvements in stroke survivor care, most commonly during onset of symptoms.; Conclusions: Stroke survivors and caregivers report significant and impactful caregiver engagement throughout the course of stroke.; Clinical Relevance: Clinicians may enhance stroke care by recognizing and facilitating caregiver efforts across all phases of stroke care.