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A Snapshot of Social Support Networks Among Parental Caregivers of Adults with Autism

This study provided a description of types and dimensions of informal and formal social support among aging parental caregivers of adult children diagnosed with autism spectrum disorder (ASD). Parents participated in a web-based survey regarding use of and satisfaction with social support services for parents or their adult children. Results indicated that many parents participated in autism support groups (27.5%), with psychiatric services (48.8%), counseling (40.6%), and financial assistance (39.7%) the most commonly used formal social supports. Emotional support (88.8%) and informational support (67.5%) were the most common informal social supports used. Professionals who are working with parental caregivers and their adult children diagnosed with ASD should be aware of available social support services to help them find needed services. 

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Key Information

Type of Reference
Jour
Type of Work
Journal article
Publisher
Springer
ISBN/ISSN
0162-3257
Publication Year
2020
Issue Number
4
Journal Titles
Journal of Autism and Developmental Disorders
Volume Number
50
Start Page
1111
End Page
1122