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"The Dementia Diva Strikes Again!": A Thematic Analysis of How Informal Carers of Persons with Dementia Use TikTok

Background: Informal carers of persons with dementia often resort to social media to alleviate their sense of social isolation and cultivate their platform to share their experience in care. Methods: The present study performed a preliminary analysis on how TikTok creators share their personal experience caring for a loved one with dementia through content shared under the hashtag #dementiacaregiver. We performed a systemic review and inductive thematic analysis of 447 TikTok posts. Findings: The content under #dementiacaregiver was interpreted to form five primary themes: (1) realities of caregiving, (2) a little levity, (3) advice for caring, (4) engagement with viewers, and (5) sensory stimulation. Conclusions: TikTok seems to have provided carers with a tool for artistic and social expression that fostered a sense of community and a place for remote belonging.

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Key Information

Type of Reference
Jour
Type of Work
Journal article
Publisher
Association for Computing Machinery
ISBN/ISSN
9781450383295
Publication Year
2021
Issue Number
11
Journal Titles
Mobile HCI
Start Page
1
End Page
6