Challenging the status quo. Commentary on "Mothers' experiences of the transition of young people with autism spectrum disorder to adult care" (McMinn, Schulz, & Ludlow, 2019)

A recent survey by the Carers Trust and the Men's Health Forum in the United Kingdom found that 42% of carers were male and about 16% were caring for those with autism spectrum disorder or an intellectual disability (https://professionals.carers.org/sites/default/files/husband%5fpartner%5fdad%5fson%5fcarer%5fa%5fsurvey%5fof%5fthe%5fexperiences%5fand%5fneeds%5fof%5fmale%5fcarers.pdf). Firstly, at the point that services for people with disabilities moved from institutional to community-based models, the focus has been on people with intellectual disabilities, many of whom would also be on the autism spectrum (although primarily undiagnosed and even unrecognised). There is limited current research on the living situation of people on the autism spectrum in the United Kingdom, but the National Autistic Society reported in 2007 that almost half of adults on the autism spectrum over 25 years of age live with their families (National Autistic Society, [23]). Caregiver burden as people with autism spectrum disorder and attention-deficit/hyperactivity disorder transition into adolescence and adulthood in the United Kingdom.