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Addington-Hall, J.

End-of-life issues in acute stroke care: a qualitative study of the experiences and preferences of patients and families

The aims of this qualitative study were to identify patients’ and family members’ experiences of acute stroke and their preferences for end-of-life care. Twenty-eight purposely sampled patients with an acute stroke who had high (n = 13) and low (n = 15) disability were selected from 191 sequential cases admitted to two general hospitals in north-east England. In addition, 25 family members of other stroke patients were recruited. Views about current stroke services and preferences for end-of-life care were elicited in semi-structured interviews.

Thu, 07/20/2017 - 15:23

A comparison of the palliative care needs of patients dying from chronic respiratory diseases and lung cancer

This paper reports on data from the Regional Study of Care for the Dying, conducted in 1990, and compares symptoms, care and service utilization for patients with chronic lung diseases (CLD) and lung cancer (LC) in the final 12 months of life. Post-bereavement structured interviews were conducted with informal carers of 449 LC patients and 87 CLD patients. The LC patients were significantly younger than those with CLD (P = 0.001) and these respondents were more likely to have been a spouse (P = 0.034).

Thu, 07/20/2017 - 15:18

The experiences of older adults in the community dying from cancer and non-cancer causes: A national survey of bereaved relatives

Background: there is limited understanding of symptoms and care in the last few months of life for adults dying from causes other than cancer.

Objective: the aim of the study is to compare the experiences in the community in the last 3 months of life of older adults dying from cancer and non-cancer causes.

Design: the study employed a retrospective cross-sectional survey of bereaved relatives.

Setting: the survey took place across eight cancer networks in England.

Thu, 07/20/2017 - 15:15

Uncertainty and anxiety in the cancer of unknown primary patient journey: a multiperspective qualitative study

Background Patients with cancer of unknown primary (CUP) have metastatic malignant disease without an identifiable primary site; it is the fourth most common cause of cancer death.

Objectives To explore patients’ informal and professional carers’ experiences of CUP to inform development of evidence-based, patient-centred care.

Thu, 07/20/2017 - 15:14

The quality and adequacy of care received at home in the last 3 months of life by people who died following a stroke: a retrospective survey of surviving family and friends using the Views of Informal Carers Evaluation of Services questionnaire

Stroke is the third leading cause of death in the UK. Despite this, little is known about the care needs of people who die from or following a stroke. In early 2003, a total of 183 questionnaires were returned from a survey of 493 people who had registered a stroke-related death in four Primary Care Trusts, giving a response rate of 37%. This paper reports on 53 deceased from the survey who had lived at home during their last 3 months and who had been ill for more than 1 month.

Thu, 07/20/2017 - 15:12

From 'conductor' to 'second fiddle': older adult care recipients' perspectives on transitions in family caring at hospital admission

Background: Family carers provide strong support for many older adults, often enabling older adults to remain at home. Little is known about the care recipients’ perspectives of the role and contributions of family carers, particularly when hospital admissions occur as part of end of life care.

Aim: This paper explores the meanings of family caring for care recipients by drawing on older adults’ perspectives about the impact of hospital admission on established family caring relationships.

Thu, 07/20/2017 - 15:09