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Challis, David

Costs of formal and informal care at home for people with dementia: 'Expert panel' opinions from staff and informal carers

Effective home support in dementia is key in delaying nursing home admission. However, home support is frequently not tailored to the individual needs of people with dementia. Staff allocating home support services may not identify important care needs, which only be recognised by informal carers. The purpose of this study was to explore the balance of informal and formal home support and their associated costs from the perspectives of both informal carers and paid staff.

Thu, 06/13/2019 - 14:03

A discrete choice experiment to explore carer preferences

Purpose: The purpose of this paper is to describe a case study to test the applicability of the discrete choice experiment (DCE) method to assess the preferences of carers of people with dementia. The focus of enquiry was home care provision. Design/methodology/approach: A multi-method approach was adopted for this pilot study. A literature review identified key characteristics of home care for dementia. This informed consultations with lay representatives. Key attributes of home care for the DCE were identified and formed the basis for the schedule.

Wed, 04/10/2019 - 12:03

Informal and formal care: Substitutes or complements in care for people with dementia? Empirical evidence for 8 European countries

On average informal caregiving substitutes for home help and nurse visits.•A complementary relationship between informal care and outpatient visits is identified.•The findings vary significantly between different geographical European countries. Background In order to contain public health care spending, European countries attempt to promote informal caregiving. However, such a cost reducing strategy will only be successful if informal caregiving is a substitute for formal health care services.

Thu, 03/07/2019 - 12:03

A step-by-step translation of evidence into a psychosocial intervention for everyday activities in dementia: a focus group study

Objective: In order to increase the efficacy of psychosocial interventions in dementia, a step-by-step process translating evidence and public engagement should be adhered to. This paper describes such a process by involving a two-stage focus group with people with dementia (PwD), informal carers, and staff.; Methods: Based on previous evidence, general aspects of effective interventions were drawn out. These were tested in the first stage of focus groups, one with informal carers and PwD and one with staff.

Thu, 01/31/2019 - 12:40

Costs of Care of Agitation Associated With Dementia in 8 European Countries: Results From the RightTimePlaceCare Study

Objective: To estimate the additional societal costs for people living with dementia (PwD) with agitation in home care (HC) and institutional long-term care (ILTC) settings in 8 European countries.; Design: Cross-sectional data from the RightTimePlaceCare cohort.; Setting: HC and ILTC settings from 8 European countries (Estonia, Finland, France, Germany, Netherlands, Spain, Sweden, and England).; Participants: A total of 1997 PwD (1217 in HC group and 780 lived in an ILTC) and their caregivers.; Main Outcome Measure

Wed, 01/30/2019 - 19:07

Costs of Care of Agitation Associated With Dementia in 8 European Countries: Results From the RightTimePlaceCare Study

Objective: To estimate the additional societal costs for people living with dementia (PwD) with agitation in home care (HC) and institutional long-term care (ILTC) settings in 8 European countries.; Design: Cross-sectional data from the RightTimePlaceCare cohort.; Setting: HC and ILTC settings from 8 European countries (Estonia, Finland, France, Germany, Netherlands, Spain, Sweden, and England).; Participants: A total of 1997 PwD (1217 in HC group and 780 lived in an ILTC) and their caregivers.; Main Outcome Measure

Wed, 01/30/2019 - 19:04

Activities of daily living and quality of life across different stages of dementia: a UK study

Objectives: People with dementia (PwD) require an increasing degree of assistance with activities of daily living (ADLs), and dependency may negatively impact on their well-being. However, it remains unclear which activities are impaired at each stage of dementia and to what extent this is associated with variations in quality of life (QoL) across the different stages, which were the two objectives of this study.

Thu, 07/20/2017 - 15:23

Care management, dementia care and specialist mental health services: and evaluation

Objective: To evaluate a model of intensive case management for people with dementia based in a community-based mental health service for older people.

Method: Quasi-experimental design. Individuals in one community team setting received case management and were compared with those in a similar team without such a service. Fortythree matched pairs were identified. Eligible older people and their carers were interviewed at uptake and again at 6 and 12 months.

Thu, 07/20/2017 - 15:12

Causes of nursing home placement for older people with dementia: a systematic review and meta-analysis

Up to half of people with dementia in high income countries live in nursing homes and more than two-thirds of care home residents have dementia. Fewer than half of these residents report good quality of life and most older people are anxious about the prospect of moving into a nursing home. Robust evidence is needed as to the causes of admission to nursing homes, particularly where these risk factors are modifiable.

Thu, 07/20/2017 - 15:08