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Gardiner, Clare

Understanding the palliative care needs and experiences of people with mesothelioma and their family carers: An integrative systematic review

Background: People with mesothelioma and their families have palliative care needs throughout the relatively short trajectory of their illness. Aim: To describe the palliative care needs and experiences of people with mesothelioma and their family carers. Design: Integrative systematic review with narrative synthesis (PROSPERO: CRD42020190115). Data sources: MEDLINE, CINAHL, PsycINFO and the Cochrane Library were searched for articles published between 01 January 2000 and 10 May 2020.

Fri, 07/22/2022 - 10:28

Comparison of financial support for family caregivers of people at the end of life across six countries: A descriptive study

Background: Family caregivers of people at the end of life can face significant financial burden. While appropriate financial support can reduce the burden for family caregivers, little is known about the range and adequacy of financial support, welfare and benefits for family caregivers across countries with similarly developed health care systems.

Wed, 01/22/2020 - 10:56

Patient and carer involvement in palliative care research: An integrative qualitative evidence synthesis review

Background: Patient/carer involvement in palliative care research has been reported as complex, difficult and less advanced compared to other areas of health and social care research. There is seemingly limited evidence on impact and effectiveness. Aim: To examine the evidence regarding patient/carer involvement in palliative care research and identify the facilitators, barriers, impacts and gaps in the evidence base.

Mon, 10/07/2019 - 10:49

Preference for a single or shared room in a UK inpatient hospice: patient, family and staff perspectives

Objective This study investigated the preferences of patients, family and staff for single or shared rooms in a UK hospice.

Method Semistructured interviews were conducted with patients, informal carers and staff at a hospice, focusing on room type preference.

Thu, 07/20/2017 - 15:11