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Groot, Marieke

"How Long Can I Carry On?" The Need for Palliative Care in Parkinson's Disease: A Qualitative Study from the Perspective of Bereaved Family Caregivers

Background: Family caregivers provide the majority of care for people with Parkinson's disease (PD) in the palliative care phase. For many this is a demanding experience, affecting their quality of life. Objective: We set out to map the experiences of bereaved family caregivers during the period of informal care in the palliative care phase as well as after the death of their loved one with PD. Methods: Ten bereaved family caregivers participated in this qualitative study.

Thu, 12/10/2020 - 17:29

How continuity of care is experienced within the context of integrated palliative care: A qualitative study with patients and family caregivers in five European countries

Background: Patients with advanced diseases often experience deficient continuity of care.

Thu, 08/16/2018 - 15:01