Iseli, Luzia Margarete

Background: Informal caregivers of people with amyotrophic lateral sclerosis (ALS) experience a range of needs across the course of the disease. For the provision of adequate support, an examination of the empirical evidence is necessary.; Aim: The purpose of the systematic review was to synthesize evidence of needs of informal caregivers of people with ALS at different stages of caregiving.; Method: Systematic review of empirical research on needs of ALS informal caregivers in both English and German, from January 2000 to August 2018.