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Kozhumam, A. S.

Multiple roles of parental caregivers of children with complex life-threatening conditions: A qualitative descriptive analysis

Objective: Children born with Complex Life-Threatening Conditions (CLTCs) often require complex and specialized services. Parents of children with CLTCs balance the role of caregiver with other responsibilities of employment, education, relationships, and self-care. The purpose of this paper is to describe the challenges for parents serving as caregivers of children with CLTCs and their intersection with health care provider expectations through utilization and adaptation of the role theory framework.

Tue, 08/23/2022 - 22:51