Lingler, J. H.

Objectives: To examine factors that influence decision-making, preferences, and plans related to advance care planning (ACP) and end-of-life care among persons with dementia and their caregivers, and examine how these may differ by race. Design: Cross-sectional survey.Setting: 13 geographically dispersed Alzheimer's Disease Centers across the United States.Participants: 431 racially diverse caregivers of persons with dementia. Measurements: Survey on Care Planning for Individuals with Dementia.

The article reports on the results of a study showing that cholinesterase inhibitors provide little benefits for informal carers of community dwelling people with Alzheimer's disease. In future Alzheimer's disease clinical trials, carer specific outcomes should be included to investigate the effects of cholinesterase inhibitors.