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Long, A.

Feasibility Testing and Refinement of a Supportive Educational Intervention for Carers of Patients with High-Grade Glioma a Pilot Study

The aim of this pilot study was to test the feasibility and acceptability of a family carer intervention for carers of patients with high-grade glioma (HGG). The intervention consisted of: (1) an initial telephone assessment of carer needs; (2) a personalised tabbed resource file; (3) nurse-led home visit; and (4) ongoing telephone support. Two consumer representatives reviewed the intervention resources. The intervention was then piloted with participants who were the primary carer for patients undergoing treatment for HGG in Western Australia.

Mon, 04/01/2019 - 12:37

Communication outcome after stroke: a new measure of the carer's perspective

Objective: To validate a measure of the carer’s perspective of a stroke survivor’s communication in everyday life.

Design: Cross-sectional, interview-based, psychometric study.  Setting: A community sample from the northwest of England, UK.  Subjects: Fifty-eight carers and 58 stroke survivors with communication problems (aphasia and/or dysarthria) following a stroke within the previous 4—12 months.

Thu, 07/20/2017 - 15:16