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Metzing-Blau, Sabine

Young carers in Germany: to live on as normal as possible - a grounded theory study

Background: In contrast to a growing body of research on the situation of adult family care givers, in Germany hardly anything is known about the situation of children and teenagers who are involved in the care of their relatives.

Methods: In this Grounded Theory study 81 semi structured interviews have been carried out with children and their parents in 34 families, in which one member is chronically ill. 41 children and 41 parents participated and the sample is heterogeneous and diverse.

Thu, 07/20/2017 - 15:23

Assessing the effect of a complex psychosocial intervention: a methodological note on determining measurement intervals

Aim Guidelines describing how to carry out a randomised controlled trial (RCT) provide no advice concerning when to measure an intervention effect. Possibly as a result, most papers give no rationales for the time frames chosen for data collection. This paper discusses four general strategies to identify when to collect data. Furthermore, an additional individual strategy concerning the current German young carers project is presented.

Thu, 07/20/2017 - 15:21

Implementing and evaluating the first german young-carers project: intentions, pitfalls and the need for piloting complex interventions

The aim of the study was to develop, implement and evaluate a concept for the first support program for young carers and their families in Germany.

Thu, 07/20/2017 - 15:15

The use of health-related quality of life (HRQOL) in children and adolescents as an outcome criterion to evaluate family oriented support for young carers in Germany: an integrative review of the lite

Background: Young people below the age of 18, whose lives are affected by looking after a relative with a disability or long-term illness, are called young carers. Evidence based family oriented support for young carers and their families in Germany is currently being developed. To allow for scientific evaluation, an outcome criterion needs to be chosen. Until today, there are no assessment instruments available, which focus on young carer's specific demands and needs.

Thu, 07/20/2017 - 15:13