CAREN logo

Carer Research and Knowledge Exchange Network (CAREN)

You are here

  1. Home
  2. Nabbout, Rima

Nabbout, Rima

Impact of childhood Dravet syndrome on care givers of patients with DS, a major impact on mothers

Background: The aim of this study was to understand the impact of Dravet syndrome (DS) on patients with Dravet syndrome and their families, with a focus on the social and economic impact on both mothers and fathers.

Mon, 01/16/2023 - 13:45

Perception of impact of Dravet syndrome on children and caregivers in multiple countries: looking beyond seizures

Aim: To assess the relevance and generalizability across countries of concepts of the impact of Dravet syndrome beyond seizures, as recognized by families.

Mon, 01/16/2023 - 13:42