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Nekolaichuk, Cheryl

Family Caregiver Participation in Palliative Care Research: Challenging the Myth

Context. Despite international guidelines emphasizing consumer-directed care and autonomous decisions in research participation, there is a common myth that research can be an additional and unwanted burden on patients and their family members. Objectives. To examine the experiences and impact of research involvement on family caregivers (FCs) of terminally ill people, focusing within home-based palliative care. Methods.

Fri, 03/22/2019 - 16:12