You are here

  1. Home
  2. Pandya, Shree K

Pandya, Shree K

Needs management in families affected by childhood-onset dystrophinopathies

Purpose: To collect information about the needs of families affected by childhood-onset dystrophinopathies residing in the United States. Methods: Individuals with an eligible dystrophinopathy were identified by the Muscular Dystrophy Surveillance, Tracking, and Research network. Between September 2008 and December 2012, 272 caregivers completed a 48-item survey about needs related to information, healthcare services, psychosocial issues, finances, caregiver demographics, and the individual’s functioning.

Thu, 12/12/2019 - 14:01