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Peters, M.

Impact of COVID-19 restrictions on carers of persons with dementia in the UK: a qualitative study

Background: informal carers provide the majority of the support for persons with dementia living at home. Restrictions imposed due to COVID-19 have had a profound impact on the daily life of the entire population. This study provides insight into the impact of these restrictions on carers of people with dementia living at home. Methods: qualitative semi-structured interviews. PARTICIPANTS: purposive sample of carers who provide at least 10 hours of care a week for the person with dementia living at home.UK.

Fri, 09/02/2022 - 20:44

Carers’ experiences of assistive technology use in dementia care: a cross sectional survey

Background: Assistive Technology (AT) supports persons with dementia and their carers (family, friends and neighbours), yet little is known about experiences and the impact of AT on carers. We report on an exploratory survey that examined the types, uses, costs and impact of AT on carers as well as their quality of life.

Fri, 08/05/2022 - 20:20

The development and validation of a quality of life measure for the carers of people with Parkinson's disease (the PDQ-Carer)

Background: Parkinson’s disease (PD) can have substantial effects not only on the quality of life of those diagnosedwith the condition but also upon the informal carers who provide support and assistance to them. However, to date no well-validated carer specific quality of life measure has been developed for carers of people with PD.

Objective: This paper documents the development and validation of a PD specific carer quality of life scale.

Thu, 07/20/2017 - 15:24

Psychometric properties of carer-reported outcome measures in palliative care: A systematic review

Background: Informal carers face many challenges in caring for patients with palliative care needs. Selecting suitable valid and reliable outcome measures to determine the impact of caring and carers’ outcomes is a common problem.

Aim: To identify outcome measures used for informal carers looking after patients with palliative care needs, and to evaluate the measures’ psychometric properties.

Thu, 07/20/2017 - 15:16

Outcome measures for informal carers of individuals with neurodegenerative conditions

The impact of a disease on a patient has become an important outcome measure in medicine and health care. More recently, increasing attention has also been paid to the impact on informal caregivers of someone with a long-term disease. Carers or caregivers play an important role in the care of chronically ill patients, particularly because there is an increase in the number of people with a long-term condition. Vitaliano et al.

Thu, 07/20/2017 - 15:14