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Schofield, P.

Codesigning a supportive online resource for Australian cancer carers: A thematic analysis of informal carers' and healthcare professionals' perspectives about carers' responsibilities and content needs

Objective: To gather preliminary qualitative data that will assist in the codesign and development of a new informational and supportive website to assist informal cancer carers in Australia. Methods: Utilising a previously tested codesign process, informal carers' experiences and perspectives, including those of healthcare professionals', were examined via focus groups and/or interviews. Data were analysed via thematic analysis. Participants Rural (n=9) and urban (n=11) carers', and healthcare professionals' (n=8) perspectives were collected.

Wed, 08/24/2022 - 11:32

Empowering dementia carers with an iSupport virtual assistant (e-DiVA) in Asia-Pacific regional countries: Protocol for a pilot multisite randomized controlled trial

Background: Dementia is a global public health priority with an estimated prevalence of 150 million by 2050, nearly two-thirds of whom will live in the Asia-Pacific region. Dementia creates significant care needs for people with the disease, their families, and carers. iSupport is a self-help platform developed by the World Health Organization (WHO) to provide education, skills training, and support to dementia carers. It has been adapted in some contexts (Australia, India, the Netherlands, and Portugal).

Tue, 08/23/2022 - 23:38

Development of an instrument to measure self-efficacy in caregivers of people with advanced cancer

OBJECTIVE: Informal caregivers of people with advanced cancer experience many negative impacts as a result of their role. There is a lack of suitable measures specifically designed to assess their experience. This study aimed to develop a new measure to assess self-efficacy in caregivers of people with advanced cancer.

Thu, 07/20/2017 - 15:22

Role recognition and changes to self-identity in family caregivers of people with advanced cancer: a qualitative study

Purpose: Family caregivers of people with advanced cancer can provide extensive support to the patient. However, the role is not well defined and their experiences are poorly understood. This study aimed to explore how caregivers view their role and the impact of their caregiving.

Methods: A symbolic interactionist framework guided the in-depth individual interviews and grounded theory methodology was used to analyse the data. A total of 17 interviews were conducted: 13 with active caregivers and 4 with bereaved caregivers.

Thu, 07/20/2017 - 15:15