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St Hilaire, Tricia

Burden of care in families of patients with early onset scoliosis

Background: Early onset scoliosis is a complex manifestation of a heterogenous group of disorders, often necessitating multiple medical and surgical interventions to address the spinal deformity and its accompanying comorbidities. Current literature documents decreases in the health-related quality of life of these patients; however, there is a distinct lack of published data examining the burden on their caregivers.

Sun, 01/29/2023 - 13:10