Stewart, L.

Background: US research organizations increasingly are supporting patient and stakeholder engagement in health research with a goal of producing more useful, relevant and patient-centered evidence better aligned with real-world clinical needs.

Aims and objectives: To develop and validate a scale to measure the burden experienced by community health volunteers.

Background: Research demonstrates the burden experienced by informal carers is substantial. There is no available information about the burden placed on community health volunteers, nor is there a scale developed for the purpose of measuring their burden.

Design: An instrument development and psychometric analysis study was undertaken.