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Torok, K. S.

Exploring the impact of paediatric localized scleroderma on health-related quality of life: focus groups with youth and caregivers

Background: Paediatric localized scleroderma (LS) can negatively impact health-related quality of life (HRQoL) by causing skin fibrosis, abnormal limb development, disfigurement, and side-effects from immunosuppressive treatment. Studies to date have rarely included qualitative data gathered directly from paediatric patients with LS.

Objectives: To assess the impact of LS on HRQoL among affected youth and their caregivers using qualitative description.

Tue, 12/13/2022 - 10:42