Skip to content

Toggle service links

You are here

  1. Home
  2. Van Der Ploeg, Ans T.

Van Der Ploeg, Ans T.

The impact of informal care for patients with Pompe disease: An application of the CarerQol instrument

BACKGROUND: Patients with Pompe disease, a rare progressive neuromuscular disorder, receive a considerable amount of informal care. In this study, we examined the impact of providing informal care to patients with Pompe disease.

METHODS: Caregivers were administered various instruments, which measured the (impact of) informal care in the context of Pompe disease. Patients' quality of life and use of a wheelchair and respiratory support were used to investigate the impact of disease severity on the burden and well-being of caregivers.

Thu, 07/20/2017 - 15:17