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Watchman, Karen

Perspectives on family caregiving of people aging with intellectual disability affected by dementia: Commentary from the International Summit on Intellectual Disability and Dementia

This article, an output of the 2016 International Summit on Intellectual Disability and Dementia, examines familial caregiving situations within the context of a support-staging model for adults with intellectual disability (ID) affected by dementia. Seven narratives offer context to this support-staging model to interpret situations experienced by caregivers. The multidimensional model has two fundamental aspects: identifying the role and nature of caregiving as either primary (direct) or secondary (supportive); and defining how caregiving is influenced by stage of dementia.

Thu, 07/05/2018 - 07:11

Changes in accommodation experienced by people with Down Syndrome and dementia in the first five years after diagnosis

Research that has tracked living situation changes is lacking for people with Down syndrome post-diagnosis of dementia. Extant studies have not considered reasons for a move, the stage at which it happened, and how involved in the decision the person with Down syndrome was. To study this, a postal questionnaire was used with 35 carers of persons with Down syndrome in Scotland who had been diagnosed with dementia during the previous five years.

Thu, 07/20/2017 - 15:13