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AAP Publications

The Experience of Housing Needs Among Families Caring for Children With Medical Complexity

Background: Caregivers of children with medical complexity (CMC) face many stressors related to their child's medical condition(s). Financial stress and its impact on housing has been reported to be a challenge among this population. However, unique housing challenges specific to CMC, including disability accommodations in the home and housing space and layout, have yet to be examined in the literature. Methods: We conducted 20 individual semistructured interviews with parents of CMC.

Sun, 02/27/2022 - 16:41

Engaging the Family in the Care of Young Adults With Substance Use Disorders

Efforts to engage young adults with substance use disorders in treatment often focus on the individual and do not consider the role that the family can play in the recovery process.

Tue, 02/22/2022 - 12:39

Advance Care Planning in Pediatric Serious Illness: Centering in the Family Experience

The article presents a study which analyzed the effects of advanced care planning interventions like the Family-Centered Advance Care Planning for Teens with Cancer (FACE-TC) on families' evaluation of their experiences in familial distress and caregiving. FACE-TC is recognized by the National Cancer Institute. Allso cited is the importance of pediatric palliative care in addressing the patients' and families' goals and values during serious illnesses.

Mon, 12/13/2021 - 15:12