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Blackwell Science

Family resources moderate the relationship between seizure control and health-related quality of life in children with drug-resistant epilepsy

Objective: Pediatric drug-resistant epilepsy (DRE) is associated with poor health-related quality of life (HRQOL). Achieving seizure control, however, does not improve HRQOL in all children. This study sought to evaluate whether (1) baseline caregiver and family factors are associated with child HRQOL at 1-year follow-up over and above epilepsy characteristics, treatment, and seizure outcome; and (2) baseline family factors moderate the association between seizure outcome and child HRQOL at 1-year follow-up.

Wed, 01/11/2023 - 15:58

Parental psychopathology and expectations for the futures of children with autism spectrum disorder

Background: The influence of parental psychopathology and parental expectations on child well-being is well documented among typically developing populations. However, to date little research has examined the relationship among these factors in families of children with autism spectrum disorder (ASD).

Tue, 12/20/2022 - 16:41

Caregiver Integration During Discharge Planning for Older Adults to Reduce Resource Use: A Metaanalysis

Objectives: To determine the effect of integrating informal caregivers into discharge planning on postdischarge cost and resource use in older adults.; Design: A systematic review and metaanalysis of randomized controlled trials that examine the effect of discharge planning with caregiver integration begun before discharge on healthcare cost and resource use outcomes.

Tue, 01/22/2019 - 12:06

Preparing Family Caregivers to Recognize Delirium Symptoms in Older Adults After Elective Hip or Knee Arthroplasty

Objectives: To test the feasibility of a telephone-based intervention that prepares family caregivers to recognize delirium symptoms and how to communicate their observations to healthcare providers.; Design: Mixed-method, pre-post quasi-experimental design.; Setting: A Midwest Veterans Affairs Medical Center and a nonprofit health system.; Participants: Forty-one family caregiver-older adult dyads provided consent; 34 completed the intervention.; Intervention: Four telephone-based education modules using v

Mon, 09/10/2018 - 11:25

Family Caregiver Factors Associated with Unmet Needs for Care of Older Adults

Objectives: To examine caregiver factors associated with unmet needs for care of older adults.; Design: Population-based surveys of caregivers and older adult care recipients in the United States in 2011.; Setting: 2011 National Health and Aging Trends Study and National Study of Caregiving.; Participants: Family caregivers (n = 1,996) of community-dwelling older adults with disabilities (n = 1,366).; Measurements: Disabled care recipient reports of unmet needs for care in the past month with activities of

Thu, 08/30/2018 - 11:39

Alzheimer's Disease: Individuals, Dyads, Communities, and Costs

Alzheimer's disease and related dementias (ADRD) affect over 5 million Americans. Over a typical disease course of 5-10 years, family caregivers provide the majority of the day-to-day hands-on on care for persons with dementia. Most caregivers enter this complex role with little training and inadequate household resources and they are tasked to navigate a fragmented health care system as well as a patchwork of community services. Our nation can and should do more to help family caregivers provide care in the home to their loved ones who suffer from dementia.

Mon, 06/11/2018 - 15:46