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Transitional palliative care interventions for older adults with advanced non-malignant diseases and frailty: a systematic review: Managing Community Care

Purpose To identify transitional palliative care (TPC) interventions for older adults with non-malignant chronic diseases and complex conditions. Design/methodology/approach A systematic review of the literature was conducted. CINAHL, Cochrane Library, Embase and Pubmed databases were searched for studies reporting TPC interventions for older adults, published between 2002 and 2019. The Crowe Critical Appraisal Tool was used for quality appraisal. Findings A total of six studies were included.

Fri, 01/15/2021 - 13:08

Promoting family inclusive practice in home treatment teams

Purpose Families play an instrumental role in helping relatives experiencing mental health issues to stay well. In the context of wider initiatives promoting family and carer needs, this study aims to evaluate the feasibility, acceptability and potential benefits of bespoke training to develop clinicians’ skills in working with families in crisis. Design/methodology/approach The study was an uncontrolled evaluation of a one-day workshop for home treatment team staff using pre- and post-questionnaires. Findings In total, 83 staff members participated.

Sun, 12/13/2020 - 16:55

Exploring mental health carers’ caregiving experiences in France

Purpose France, once a pioneer in psychiatry, is now sinking as its population faces major mental health challenges. This includes the 12 Million French individuals with psychiatric conditions, the lack of appropriate structures and the shortage of skilled mental health professionals, but it also leaves families in critical situations. The purpose of this study is to explore the carers’ caregiving experiences and to suggest ways to organise educational programmes to support mental health carers in France.

Mon, 11/30/2020 - 12:40

An autoethnography of death and dying in Northern Ireland: Managing Community Care

Purpose In Northern Ireland, access to good quality palliative care is an accepted and expected part of modern cancer care. The “Transforming Your Palliative and End of Life Care” programme “supports the design and delivery of coordinated services to enable people with palliative and end of life care needs to have choice in their place of care, greater access to services and improved outcomes at the end of their lives”.

Thu, 11/19/2020 - 14:40

The effect of family teaching on depression, anxiety and stress in caregivers of patients received electroconvulsive therapy

Purpose The purpose of this paper is to evaluate the effect of the planned pre-electroconvulsive therapy (ECT) family teaching on depression, anxiety and stress of caregivers of patients with mental disorders receiving ECT. Design/methodology/approach In this quasi-experimental study, 130 participants were randomized allocated into intervention or control groups. The planned family teaching program consisted of four 90 min sessions held during four weeks.

Tue, 10/22/2019 - 16:33

Organising and supporting direct payments

This case study gives an example of a well-established direct payments service, managed by Hampshire County Council in partnership with users of direct payments, carers and voluntary sector support agencies.

Thu, 07/20/2017 - 15:24

Choice of where and how you live: how families can create new solutions to a familiar problem

The White Paper Valuing People said the aim for people with learning disability should be choice of where and how you live. This is rarely the experience to date. A publication has been written for family carers, social workers and others who want to find out more about the various housing and support options for people with learning disabilities. It explains the choices, how to go about getting housing and what support people can find. Six individuals and their families allowed us to describe their different ways of creating housing and support arrangements.

Thu, 07/20/2017 - 15:19

Two years on

Briefly reports on the Alzheimer's Society Lesbian and Gay Carers Network.

Thu, 07/20/2017 - 15:17

Blue sky thinking? I don't think so

This is a personal account of the issues faced by carers of a young adult with autism and a learning disability in making the transition from children's services to an adult residential setting, and the ongoing difficulties in maintaining his well-being and ensuring his future quality of life.

Thu, 07/20/2017 - 15:16

Exploring unforeseen outcomes - examining the potential that personalised technology can have for changing the behaviour patterns of people with learning disabilities

This article explores how personalised technology could have the potential to change the behaviour of people with learning disabilities, enabling them to take more control of their lives and increase their independence. Hft investigates unforeseen outcomes in its work with people with learning disabilities and personalised technology and asks whether personalised technology could be used as a training tool?

Thu, 07/20/2017 - 15:13