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John Wiley & Sons

Caring for caregivers: Understanding and meeting their needs in coping with first episode psychosis

Aim: The first episode of psychosis is a challenging time for both patients and those who care for them. Although literature on treatment is plentiful, literature on how to best support caregivers is more scarce. This review was undertaken to better understand the caregiver experience, determine which interventions most effectively alleviate their burden and examine which other factors may affect outcomes.

Mon, 11/23/2020 - 14:08

Caring for a family member with intellectual disability into old age: Applying the sociocultural stress and coping model to Italian and Greek migrants in Australia

Background: Little is known about how older parent caregivers from culturally and linguistically diverse (CALD) backgrounds experience caring for their family member with intellectual disability into late life. Method: In‐depth semi‐structured interviews were carried out with N = 19 family caregivers aged 50–91 from ten Italian and four Greek families. The Sociocultural Stress and Coping Model was used as a framework to interpret their experiences.

Mon, 11/23/2020 - 13:31

Caregiving experiences of Korean family caregivers of cancer patients: An integrative literature review

Objective: The purpose of this study was to describe the experiences of Korean family caregivers of patients with cancer by reviewing recent literature. Methods: Five electronic databases were searched—MEDLINE, the Cumulative Index to Nursing and Allied Health Literature (CINAHL), and PubMed for English literature, and Korean Information Service System (KISS), and Research Information Sharing Service (RISS) for Korean literature for articles published from January 2010 to March 2020 using the key words cancer, caregiver, and Korean.

Mon, 11/23/2020 - 13:17

Caregiver Needs Assessment in Primary Care: Views of Clinicians, Staff, Patients, and Caregivers

OBJECTIVES To understand current practices, challenges, and opportunities for a systematic assessment of family caregiversʼ needs and risks in primary care. DESIGN Qualitative study consisting of in‐depth semi‐structured interviews. SETTING Four primary care practices located in urban and rural settings. PARTICIPANTS Primary care clinicians, staff, and administrators (N = 30), as well as older adult patients and family caregivers (N = 40), recruited using purposive and maximum variation sampling.

Mon, 11/23/2020 - 12:12

Burden and quality of life in caregivers of patients with amputated diabetic foot

Informal caregivers of chronically ill patients often report burden and poor quality of life. This study aimed to evaluate the impact of caring on caregivers of amputated patients with type 2 diabetes and diabetic foot. A cross‐sectional study included a convenience sample of 110 caregivers who answered: the Burden Assessment Scale, the Depression Anxiety Stress Scales, the Social Support Satisfaction Scale, the Family Assessment Device, and the Short Form Health Survey.

Mon, 11/23/2020 - 11:14

Effect of the COVID‐19 pandemic on the mental health of carers of people with intellectual disabilities

Introduction: The measures implemented to manage the COVID‐19 pandemic have been shown to impair mental health. This problem is likely to be exacerbated for carers. Method: Informal carers (mainly parents) of children and adults with intellectual disabilities, and a comparison group of parents of children without disabilities, completed an online questionnaire. Almost all the data were collected while strict lockdown conditions were in place.

Thu, 11/19/2020 - 12:27

A Hitchhiker's Guide to caring for an older person before and during coronavirus‐19

Coronavirus‐19 (COVID‐19) has reconfigured working lives with astonishing velocity. Older people have suffered the worst effects of the pandemic, with governments marginalizing or overlooking their needs. Women perform the majority of care for older people, often compromising their working lives and health. Yet in academic articles their voices are often filtered or aggregated in quantitative studies.

Thu, 11/19/2020 - 12:12

Caring for loved ones with cancer during the COVID-19 pandemic: A double hit risk for social isolation and need for action

Key Points

  • With social distancing and visitors limited in healthcare, caregivers of cancer patients are at increased risk for isolation.
  • Caregivers may have learned particular lessons that can foster resilience from isolation.
  • Telehealth and phone check‐ins offer opportunities to support caregivers.
  • Policy initiatives have the potential to continue support for caregivers post‐COVID.
  • Supporting caregivers is a community effort, and its importance should not be forgotten post‐COVID.
Mon, 11/16/2020 - 12:57

Affective temperament traits may explain high expressed emotion in caregivers of patients with Alzheimer's disease

Background: The negative interactions between Alzheimer's disease (AD) patients and their caregivers may provoke criticism, hostility, and emotional overinvolvement that characterise highly expressed emotion (EE) attitudes. In this study, we hypothesised that affective temperament traits of AD caregivers are related to their high EE levels independent from other patient and caregiver characteristics. Methods: Eighty AD patients were assessed through Clinical Dementia Rating Scale (CDR), and Mini‐Mental State Examination.

Mon, 11/16/2020 - 12:14

Achieving Health Equity in Embedded Pragmatic Trials for People Living with Dementia and Their Family Caregivers

Embedded pragmatic clinical trials (ePCTs) advance research on Alzheimer's disease/Alzheimer's disease and related dementias (AD/ADRD) in real‐world contexts; however, health equity issues have not yet been fully considered, assessed, or integrated into ePCT designs. Health disparity populations may not be well represented in ePCTs without special efforts to identify and successfully recruit sites of care that serve larger numbers of these populations.

Mon, 11/16/2020 - 11:47

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