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Making her end of life her own: Further reflections on supporting a loved one with motor neurone disease

Background: People can live for many months without knowing why their body is failing prematurely before being diagnosed with motor neurone disease (MND); a terminal neurodegenerative disease which can be experienced as 'devastating' for the person and their family. Aim: This study aimed to explore the meaning of supporting a loved one with MND to die. Methods: This study uses reflection and autobiographical story to connect with broader cultural, political and social meaning and understandings of dying.

Wed, 10/09/2019 - 13:29

Decision making for people living with dementia by their carers at the end of life: A rapid scoping review

Background: There are an increasing number of people living with dementia, as well as an expectation that care decisions are made collaboratively with those with the disease entering the end stage and their families. This has increased the burden on family carers. Aim: To explore the evidence on the decisional support needs of informal carers of people with end-stage dementia. Design: A rapid scoping review was undertaken of peer-reviewed publications between 2000 and 2016, which included all health-care settings and the person's own home.

Mon, 05/13/2019 - 15:19

Good communication with family of people with dementia at end of life: reflections of an Admiral Nurse

As the incidence of dementia is increasing, so health and social care professionals are facing a challenge to deliver good quality end-of-life care. Historically, it is not an area that has been afforded much attention until recently, but interventions such as Admiral Nursing are well placed and equipped to work with and support families at this time. It is essential, in supporting a family to live as well as they can following a diagnosis of dementia, to facilitate dying well with or from dementia.

Wed, 04/03/2019 - 09:52

Challenges and support for family caregivers of glioma patients

Glioma patients are not only confronted with the diagnosis and treatment of cancer, but also with disease-specific symptoms that greatly affect everyday life. Common symptoms among patients include motor dysfunction, sensory loss, seizures, cognitive deficits, changes in behaviour and personality, mood issues, and fatigue. This review focuses on family caregivers, for whom dealing with the diagnosis and treatment of a brain tumour in their loved one while managing disease-specific symptoms can be challenging.

Mon, 03/25/2019 - 10:14

Ensuring that young carers have the support they need in school

The author discusses activities of a social inclusion team working at George Spencer Academy, which specializes in aiding the learning of young carers. He cites a research by BBC, which suggests that schools should identify the support needs of such vulnerable group of students by looking out for particular factors signifying that the student is a young carer. Among various facilities, the policy also offers individualized support, staff training, and reasonable allowances.

Thu, 07/20/2017 - 15:14

Young carers meet with top health figures

Senior health figures, including Simon Stevens, the chief executive of NHS England, and Norman Lamb, the minister for care, met teenage carers in an event at the London Zoo.

Thu, 07/20/2017 - 15:12

Research highlights the bullying faced by young carers because of their caring role

The article discusses the results of a research report done by the group Carers Trust which shows that a quarter of young adult carers aged 14 to 25 still in school experience bullying and mental health problems. Topics covered in the report entitled "Young Adult Carers at School" include issues like school work struggles, support and time management. The report also urges the implementation of a clear framework of support for young carers among schools.

Thu, 07/20/2017 - 15:10

Many young carers are being punished in schools

The article focuses on young carers who are often punished for poor attendance and punctuality by school staff who do not know about or understand their personal circumstances. It states that more than half of the young carers involved in the study had missed school with 60% saying they had problems with punctuality. It suggests that schools should work with local young carers services to raise awareness of those students who are affected and advises to use student and parent questionnaires.

Thu, 07/20/2017 - 15:09

Data suggests that thousands of young carers remain 'hidden' in our schools

Yet further evidence has emerged of the huge number of young carers whose caring roles are not known to their school and who are therefore not receiving the support they need. Almost 500 young carers who were previously unknown to their schools were discovered during a project to offer young carers better recognition and support. The 35 schools taking part in the Young Carers in School programme reported a dramatic impact on the attendance, achievement and confidence of pupils who care for a loved one.

Thu, 07/20/2017 - 15:09