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How does a family caregiver’s sense of role loss impact the caregiving experience?

Background: Family caregivers reportedly have a powerful sense of role loss, which is felt when one senses a change in role or responsibility, relationship distancing, or a changed asymmetry.

Fri, 09/02/2022 - 20:25

Family caregivers’ experiences with tele-rehabilitation for older adults with hip fracture

Background: There is a knowledge gap for implementing tele-rehabilitation (telerehab) after hip fracture. We recently conducted a clinical trial ( Identifier: NCT02968589) to test a novel online family caregiver-supported rehabilitation program for older adults with hip fracture, called @ctivehip. Objectives: In this qualitative substudy, our objective was to use semi-structured interviews to explore family caregivers experience with the telerehab program.

Fri, 09/02/2022 - 10:42

Informal caregiving, loneliness and social isolation: A systematic review

Background: Several empirical studies have shown an association between informal care-giving for adults and loneliness or social isolation. Nevertheless, a systematic review is lacking synthesizing studies which have investigated these aforementioned associations. Objectives: Therefore, our purpose was to give an overview of the existing evidence from observational studies. Materials and Methods: Three electronic databases (Medline, PsycINFO, CINAHL) were searched in June 2021.

Thu, 09/01/2022 - 11:42

The experiences of people with dementia and informal carers related to the closure of social and medical services in poland during the covid-19 pandemic—a qualitative study

Background: Older people with dementia are particularly at risk of COVID-19; however, relatively little is known about the indirect impact of the pandemic on the lives of those living with, and/or caring for someone with, dementia. Objectives: The aim of this study was to investigate the experiences of people with dementia and informal carers during the closure of available social and medical services in Poland during the COVID-19 pandemic.

Thu, 09/01/2022 - 11:08

Exploration of caregiver experiences of conservatively managed end‐stage kidney disease to inform development of a psychosocial intervention: The acorn study protocol

Background: End‐stage kidney disease (ESKD) is an overwhelming illness that impacts not just patients, but also their informal carers. Patients who opt for conservative management rather than dialysis experience difficult symptoms and the psychosocial consequences of their condition.

Thu, 09/01/2022 - 10:26

Examining the influence of social interactions and community resources on caregivers’ burden in stroke settings: A prospective cohort study

Background: Since the introduction of the integrated care model, understanding how social interactions and community resources can alleviate caregivers’ burden is vital to minimizing negative patients’ outcomes. Methods: This study (n = 214) examined the associations between these factors and caregivers’ burden in stroke settings. It used 3-month and 1-year post-stroke data collected from five tertiary hos-pitals. Subjective and objective caregivers’ burdens were measured using Zarit burden interview and Oberst caregiving burden scale respectively.

Wed, 08/31/2022 - 18:41

Family caregivers of people with dementia have poor sleep quality: A nationwide population-based study

Background: Previous studies have documented cognitive impairments, psychological stress, and depressive symptoms in family caregivers of people with dementia (PWD), which could be attributed to their sleep disturbances. Notwithstanding the increasing recognition of poor sleep quality and sleep disturbances in family caregivers of PWD, their association has not been tested yet using population-representative samples. Methods: We conducted a retrospective, cross-sectional study using population-based data from the 2018 Korean Community Health Survey.

Wed, 08/31/2022 - 15:16

Resilience, emotional intelligence, and occupational performance in family members who are the caretakers of patients with dementia in spain: A cross-sectional, analytical, and descriptive study

Background: The concern in the scientific community for the study of people with dementia and their families is comprehensible, especially the importance of knowing the effects that caring for the patient has on their family dynamic, paying special attention to the main caregiver.

Wed, 08/31/2022 - 13:30

The expert caregiver intervention targeting former caregivers in finland: A co-design and feasibility study using mixed methods

Background: Informal caregivers face risks of social isolation. Given the high prevalence of informal caregivers in Europe, a considerable proportion of the population are also former caregivers. The Finnish Expert Caregiver intervention sought to train former caregivers to become volunteers aim-ing to support current caregivers through mainly peer support.

Tue, 08/30/2022 - 17:54

Effectiveness of a mindfulness-based intervention program for women family caregivers of older adults

Background: The objective of this study was to analyze the effectiveness of a mindfulness-based intervention program for the promotion of well-being and health in family caregivers. Methods: The participants were 111 family women caregivers aged between 33 and 75 years old. This was a double-blinded randomized controlled trial. The mindfulness intervention program lasted 12 weeks. The experimental group underwent mindfulness and acceptance-based interventions (MABIs). The control group performed physical activity training.

Sat, 08/27/2022 - 12:04

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