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Parent-Child Communication in a Childhood Cancer Context: A Literature Review

This integrative literature review examines the facilitators and barriers to open and clear parent-child communication in the context of childhood cancer (for this literature review, child refers to ages 0 to 19 years). The Resilience in Illness Model (Haase et al., 2017) was employed to organize the findings and link to resilience outcomes among children with cancer. In a search of three international databases (PubMed, CINAHL, and PsycINFO), 18 studies met inclusion criteria and were selected for review.

Thu, 01/05/2023 - 15:12

Family Psychoeducation Program to Support Caregivers and Children/Adolescents with Mood and Anxiety Disorders

Anxiety and mood disorders represent two of the most common disorders experienced by children/adolescents. Untreated anxiety or mood disorders can put children and adolescents at risk for other conditions, like disruptive behavior and substance use disorders, that can have far-reaching consequences even after the mood or anxiety disorder is treated. For caregivers, providing care or raising a child or adolescent with a diagnosed mood or anxiety disorder can impact caregivers in various ways.

Wed, 12/21/2022 - 10:08

Perceptions of Unmet Cultural Needs: Punjabi Families' Challenge to Maintain Culture and Identity within Pediatric Medical Settings

The hospitalization of a child is a very tumultuous time for the caregiver. Going through the entire process of hospitalization from being admitted, to the diagnostic process, can be overwhelming to understand for caregivers. For caregivers who are not familiar with the American medical system, this process is even more unsettling and stressful. The purpose of this study was to examine culturally competent practices within the pediatric medical setting from the perspective of Punjabi families.

Tue, 12/20/2022 - 09:17

The moderating role of perceived social support on early maladaptive schemas and well-being for primary caregivers of dementia patients

Objective: This study aims to investigate the moderating role of perceived social support on early maladaptive schemas and well-being for primary caregivers of dementia patients. Method: Ninety-nine adult children as the primary caregivers of dementia patients participated in the study. They completed the measures of Young Schema Questionnaires-Short Form 3 (YSQ-SF3), Caregiver Well-Being Scale, and Multidimensional scale of perceived social support (MSPSS).

Wed, 08/10/2022 - 20:52

Stress and Depression in Family Members of Patients with Dementia in Urban and Rural Communities: Cross-Sectional Surveys in Korea

Background: Re compared the associations of socioeconomic factors with stress and depression among family members living with a dementia patient in urban and rural areas of South Korea. Methods: Data were collected from 9,730 (4,560 urban and 5,170 rural) participants in the Korean Community Health Survey from 2014-17. The variable of interest was the presence of a cohabitating dementia patient, and the dependent variables were stress and depression.

Wed, 08/10/2022 - 15:26

Prevalence of psychological disorders among caregivers of children with intellectual disabilities and motor disabilities in Shiraz

Introduction: The prevalence of mental disorders plays an important role in identifying the state of mental health of the community and estimate the required facilities at any time. Objectives: Therefore, the purpose of this study was to investigate the prevalence of psychological disorders in caregivers of children with intellectual disabilities and motor disabilities in Shiraz. Methods: The research was descriptive and cross-sectional survey.

Sun, 06/12/2022 - 18:41

The Latino Family Caregiving Experience Along the Trajectory of Dementia

Background: The number of people affected by dementia continues to increase. Dementia is progressive and affects the ability of the person to care for themselves with time. The persons living with dementia have cognitive changes that worsen over time and affect their physical function. Latino families are known for being a collectivist culture who value family. There are studies that describe the experience of caregivers caring for someone with dementia; however, vi few are focused on multiple family members.

Tue, 06/07/2022 - 13:13

Informal Family Caregiving at the End of Life: A Discursive Analysis

Background: Shifts in locations and levels of care and changing demographics have created a high demand for informal family caregivers. The U.S. healthcare system could not sustain the financial or human resources necessary to meet the needs of care recipients who are dying without the assistance of informal family caregivers. End-of-life caregivers pay a price— emotional, social, financial, and physical—throughout the caregiving process. Many factors contribute to the cost of caregiving, such as caregiver distress and burden.

Mon, 06/06/2022 - 15:53

Informal caregivers’ preparation and administration of home hospice prescribed injectable subcutaneous drugs – a prospective observational pilot study

Introduction: Patients at the end-of-life often require subcutaneously administered medications. At present it is impossible for hospice home care nurses to prepare ampule drugs before each administration. Aim of the study: To assess the feasibility of the preparation and administration of these drugs in practice. Material and methods: The training was performed on 37, not previously instructed, adult informal caregivers.

Mon, 06/06/2022 - 12:48

Factors associated with post-traumatic stress disorder in family caregivers of psychotic patients

Introduction: An association can be found between patient with psychosis and perpetrating acts of violence. So, the caregiving role can impact negatively on psychosis carer psychological health and wellbeing. Objectives: The aim of this study was to identify the factors associated with post-traumatic stress disorder (PTSD) in family caregivers of psychotic patients following exposure to aggression. Methods: This cross-sectional study was carried out involving 95 family caregivers of psychotic patients followed in psychiatry.

Sun, 04/24/2022 - 20:37

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